Earlier this week, it was announced that the Whittemore Peterson Institute (WPI) won $100,000 in the Vivint Gives Back Project . This was very exciting news both for the WPI and the patient community. You can watch the video and hear Annette Whittemore's moving speech below. Thank you to all who voted to help make their win possible! And, of course, thanks to Vivint for such extraordinary generosity.
In other recent news from this summer, a group of highly respected specialists and researchers from around the globe have published a paper in the Journal of Internal Medicine entitledMyalgic encephalomyelitis: International Consensus Criteria . In the paper, the authors note that the original medical term for this illness is myalgic encephalomyelitis (ME), and suggest it is time to cease use of the inappropriate term 'chronic fatigue syndrome.'
The label 'chronic fatigue syndrome' (CFS) has persisted for many years because of the lack of knowledge of the aetiological agents and the disease process. In view of more recent research and clinical experience that strongly point to widespread inflammation and multisystemic neuropathology, it is more appropriate and correct to use the term 'myalgic encephalomyelitis' (ME) because it indicates an underlying pathophysiology. It is also consistent with the neurological classification of ME in the World Health Organization's International Classification of Diseases (ICD G93.3).
The paper goes on to describe ME as "an acquired neurological disease with complex global dysfunctions, pathological dysregulation of the nervous, immune and endocrine systems, with impaired cellular energy metabolism and ion transport."
The authors state that the primary goal of their report is to establish a more selective set of clinical criteria that will enable patients with ME to be diagnosed and enrolled in research studies using a case definition that is acceptable to physicians and researchers around the world.
You can find a summary of the ME International Consensus Criteria here .
What does this all mean? For many of us in the patient community, it means a lot. It means hope.