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New ME/CFS Study Looking for Participants

Posted Jan 24 2012 10:36am 1 Comment
This weekend, Dr. Levine told me about a new ME/CFS study looking for participants (Dr. Klimas is also involved).  Unfortunately, I don't qualify for this one, but I offered to post the requirements here to try to help find more participants.

This new study will be looking into infectious agents related to ME/CFS, a very worthy purpose!  The study is in need of both ME/CFS patients as well as age-matched controls.  Here are the requirements for ME/CFS participants
  • Age between 18-65
  • Must live within 100 miles of NYC
  • Must be off all antibiotics and antivirals for at least 3 months (possibly 6 months for antivirals) - the study will be recruiting patients all year, so there is time to go off these meds, if you want to, though, obviously, the doctors don't want you to go off meds just for the study if it will affect you adversely.
  • The study is particularly interested in recent onset, within 3 years, though I believe those who've been sick longer can also be included.
  • Abrupt onset or gradual onset is fine.
  • Study is especially interested in patients who are at least 50% disabled, i.e. able to function at only 50% (or less) of how you functioned before getting sick.
  • If you can also supply your own age-matched control, even better! 
All that is required is a brief questionnaire (either online or over the phone) plus one visit to Dr. Levine's office in NYC for blood and tear samples.  ME/CFS patients get $100 for participating; controls get $50.

Even if you don't qualify as a patient, if you have a family member or friend interested in helping ME/CFS research as a control (within 100 miles of NYC), that would be helpful as well.

E-mail Dr. Susan Levine if you and/or a healthy control are interested in participating.
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If you live in California or are willing to fly there...Here is another clinical trial for CFS.

San Francisco Bay Area Chronic Fatigue Syndrome (CFS) Specialist Dr. Jon Kaiser is looking for 20 patients with significant CFS symptoms to help him continue testing a new nutrient-drug hybrid treatment that has already shown promise in a significant number of CFS patients.

The treatment combines a low dosage of a currently available medication with a potent nutrient-antioxidant cocktail that boosts immune function to provide CFS patients with a healthy and balanced increase in their energy level. The trial will last for one month. The office visits and the nutritional supplement are provided free of charge. There will also be an opportunity to continue this treatment beyond one month if you experience benefits. Dr. Kaiser’s office is located 30 minutes north of San Francisco in Mill Valley. The patient must be present for at least two appointments.

Conditions which may exclude a person from this trial are: significant fibromyalgia, a history of heart disease, uncontrolled high blood pressure, major depression, or ulcer disease.

For more information or to enroll in the trial, please email Anne Lahaderne at or call her at (415) 381-7655. Thank you for your consideration.    Website:


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