I just had my first doctor's visit with my CFS specialist since starting antibiotics for the Lyme 6 weeks ago. My blood work for the few tests came back at reasonable enough levels that he didn't want to run anything for my next visit in 2 months! That was a first.
My reverse T3 levels (thyroid) have gone down to 12 (from a whopping 55 when I first started seeing him 2.5 years ago) and he's happy with that; I still have to take 33 mcg bioidentical T3 hormone to get my reverse T3 levels down more, but he didn't increase the dosage like last time.
My cortisol levels were within range (they have been too high recently).
My vitamin D was super low (range is 30-110, and I was at 33!) so he told me to take 10000 IU per day.
At the last visit, my natural killer cells were super low (though still higher than when I started with him) but he didn't test them this time.
He said he's happy that the zithromax antibiotic I'm taking is doing *something* so he's going to keep me on it but also add TWO other medications to the mix. Gah!! My poor body, I don't know how my sad little liver will handle processing all these meds. He told me to beef up my intake of probiotics for 3-4 days prior to starting these and then give 'em a try to see how I react. The two are
Amantadine, 100mg (an antiviral that has been shown to target the cystic form of the Lyme bacteria...Lyme is apparently very adaptive and has a cystic form! Who knew)
Suprax, 400 mg (an antibiotic, in case the Lyme has found ways to go around the Zithromax; again, it's super adaptive)
Some things I learned about Lyme from my barrage of questions
There is some early evidence that it can be transmitted between people (from mother to baby in womb, between sexual partners).
He has a patient whose been on treatment for Lyme for a year and is now 100% better from her CFS. She's back to exercising and back in school. The story gave me hope :)
Anyway, we'll see how things go with all those extra meds! I'm feeling positive and hopeful, though. I will get better (one day); that's my mantra! Hope everyone's having a lovely Memorial Day Weekend if you're in the US :)