I managed to catch a couple of hours of the FDA Workshop for ME/CFS this afternoon after my nap. Wow.
This is truly an amazing thing happening - between the patient panel and interactive discussions with the entire audience of patients and public testimony, the FDA is spending two days listening to dozens and dozens and dozens of patients and doctors talk first-hand about their experiences with ME/CFS. This meeting is going to be a game-changer!
If there is any way you can tune in for at least a portion of the meeting tomorrow, you should! Here is the agenda and here is the link to the live webcast .
I am wishing now that I had gone to the meeting myself. I was asked to be on one of the patient panels, but I have been struggling a bit lately and didn't think I could manage it. But I am definitely going to submit my comments (FDA will accept them until August 2).