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ME/CFS Family Study

Posted Apr 06 2011 4:17pm
Dr. Jamie Deckoff-Jones is starting an informal study of ME/CFS and related illnesses in families.  She works for WPI and writes a blog about her and her daughter's experiences with CFS.  They are both XMRV positive and have been trying anti-retrovirals.  Her blog is very interesting and always enlightening, but be forewarned: there is often a lot of mud-slinging among the commenters.

Whether you have family members who are ill or not, please take a moment to visit her blog and answer the survey questions (via e-mail and confidential).  Obviously, possible transmission of CFS among family members is a subject of great importance to my family.  This is long overdue, and anything that helps to shed some light on the mechanisms of ME/CFS is a good thing. 
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