Dr. Jamie Deckoff-Jones is starting an informal study of ME/CFS and related illnesses in families. She works for WPI and writes a blog about her and her daughter's experiences with CFS. They are both XMRV positive and have been trying anti-retrovirals. Her blog is very interesting and always enlightening, but be forewarned: there is often a lot of mud-slinging among the commenters.
Whether you have family members who are ill or not, please take a moment to visit her blog and answer the survey questions (via e-mail and confidential). Obviously, possible transmission of CFS among family members is a subject of great importance to my family. This is long overdue, and anything that helps to shed some light on the mechanisms of ME/CFS is a good thing.