Well, Invisible Awareness is now an official organization! Woo Hoo. It has taken almost a year to bring it to fruition, but now I have!
I’m excited to share our first story – Laurel’s story – on the site. Laurel, for those who don’t know her, is bed bound and has been so for the past 10 years. She is unable to stand, shower, walk, and cannot speak above a whisper. Nor can she also cannot speak for more than five minutes at a time.
More importantly, she is no longer able to read in the conventual manner, (she listens to books), cannot watch movies anymore and is no longer able to hang out with friends, follow her dreams or work.
Laurel is considered a 25% ME/CFSer meaning that she is in the group of ME/CFS who are the most severely effected by this devastating illness. Those who are this severely effected consist of about 25% of all those who have ME/CFS.
Here is an excerpt from Laurel’s story,
I remember the exact moment I first became ill. It was December 31st, 1996 around 3 o’clock in the afternoon.
I was walking down the hallway of my cheerful, 2-bedroom apartment, about to shower and get ready to go out with friends so we could celebrate the new year. As I got about halfway down the hall, I quite literally and suddenly felt like I had been hit with a ton of bricks.
I remember stopping in my tracks as I leaned my hand against the wall to hold myself up. “What the heck….” I murmured out loud, astounded by how abruptly ill I felt.
You can read the rest of her story by going here .
If you are interested in sharing your story for Invisibile Awareness’s March story, please feel free to email me through the contact form.