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Posted Jun 15 2010 12:00am
A big thank you to all who commented on my last. I do read them all, sometimes many times but often just don't have the energy and the time to reply individually. Your feedback is always valuable.

I'm definitely seeing a bit of recovery and am finding the challenge of managing my energy and time quite difficult. I've gone up a gear and the temptation is to go up two gears and there are days when I do that and pay the price. Generally, I'm spending less time at the computer or watching TV and my morning routine has changed too. I've built in a new habit which is to get up, stretch and get showered and dressed before I have any coffee or breakfast. Sometimes I don't make it, but that's ok. There was a time when that would have been my whole day's activity. I'm still sticking to three half hour rests per day but occasionally the morning one gets dropped, say if I'm out doing the Art Group thing, or just in a busy flow. I do notice it if I don't get the morning rest though and, unfortunately so does everybody else as I tend to get rather ratty.

The improvement could be just a Summer blip, but I feel it is because I have changed the way I'm dealing with my emotional life. I'm letting it all hang out and there has been much weeping and wailing and gnashing of teeth. I've found a new mode of expressing myself in my crochet and other art. So even if I'm not consciously 'emoting' I'm exploring and getting a satisfying feeling putting something out there. So simple to put down in words, but this shift has been waiting a lifetime to happen. It's a bit like suddenly learning to stand on your surf board and ride the waves, instead of floundering about and being overwhelmed by them.

I love stretching in the morning. I do a form of Jogalates which is a sort of hotchpotch of all the yoga, Pilates and physio exercises I have learned over the years. Again, I have to be careful not to overdo it, remembering the eighty percent rule. If I push to ninety percent I'll be strapped up to the TENS machine and popping pills by the afternoon. Since I've started stretching again I've noticed a sharp reduction in my use of TENS and paracetamol. Also, through the day, I'm much more aware of my posture and take time to do little mini stretches, say when the microwave is heating up some milk or something.

I mentioned this book: Fibromyalgia; Simple Relief through Movement by Stacie L Bigelow in my last post which has certainly motivated me to get moving. So thanks for that again Ashy. I'm afraid I gave up on the book when she starts talking about aerobic exercise but it's aimed at people purely with FMS. The most important concept I think I've gained from is that you need a good base of activity before you start exercising. So it's no good sitting around all day watching TV and then expecting to do half an hour's aerobic power walking without pain. In fact, if all you do is activity and never exercise, that's fine. Activity is something like preparing a meal, putting the laundry in the machine, walking upstairs and so on.

I would like to pass this book onto someone with FMS who thinks they would benefit from it. So first come, first served. If you would like it, email me and let me know. I don't mind posting it to the other side of the world if you think it will do you good.

OK, that's enough for today. Got to go for my morning lie down. You take care of yourselves now.

I'm glad to report that the book has been claimed and is going to a good home.
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