Has it really been two months since my last post? I really have no idea how time can be passing so quickly...sheesh! Well, Merry Christmas, Happy Hanukkah, and Happy New Year!
I went back to the dermatologist to review my results with her, and she said I do not have lupus. All my follow up tests had come back normal. She did not have any suggestions as to why my other tests were abnormal or why I was losing my hair. She suggested I use maximum strength Rogaine for men and come back in a few months.
Uh, no thanks. I will not be going back to a dermatologist who doesn't even examine my hair, skin, or nails.
After my last experience with a specialist (i.e., when I was MISdiagnosed with epilepsy), I vowed to always seek a second opinion when it comes to more complex diseases and conditions. I made an appointment with a rheumatologist recommend by my local Lupus Foundation chapter.
The good doctor took a very thorough medical history and did a full exam. He confirmed that I did not have lupus, but he noticed that I had unusual muscle weakness. He asked if I had ever been to a neurologist for the weakness. I told him no because I had always assumed it was Chronic Fatigue Syndrome. He suggested the possibility of a metabolic myopathy.
Sigh. I often dream of what life would be like if I were normal and healthy and not scheduling medical appointments with specialist after specialist. Wouldn't that be nice?
Deciding to follow up on this new possibility, I ended up making an appointment with a neurologist who specializes in neuromuscular diseases (I didn't want to take any chances going to a general neurologist again). I'll write more about my initial appointment in my next post.