Sorry I've been writing so little here lately, but I've continued to be very ill - still going through the herx reaction from restarting Lyme treatment, I guess. It's been over 5 weeks now. I do seem to feel a little better today, but I don't want to get my hopes up! The last two times I started antibiotics for Lyme, I had severe herxes lasting 8 weeks and 6 weeks, respectively, so we'll see.
I'm feeling a bit victorious today, for surviving another big holiday weekend. A friend e-mailed me on Friday to ask what we were doing for Easter, and she mentioned that they didn't really have any plans - probably just dinner with family on Sunday. Given how bad I've been feeling lately, that sounded wonderful! Our holidays are never quiet and relaxed because none of our family live nearby. Every single holiday involves a trip to visit family, staying in someone else's house, and lots of noise and activity (and my family is NOT the silent type!). This past weekend was no exception.
We drove to my Mom's house, about 3 1/2 hours away, on Friday and spent the weekend in a house with 10 people! I'm sure you can all relate to the challenges of being away from home when you have CFS. I have to take a strong dose of Ambien just to be able to sleep at night, and the constant noise and chaos can really wear me out.
I managed OK this weekend, mostly because I've been so severely ill lately that I had very low expectations for myself. I've had so little stamina that I didn't even try to keep up with everyone else. I went to bed by 10 each night, did very little to help with meals (it's so hard for me not to pitch in!), and didn't even attempt to go along on the annual family scavenger hunt. Also, I was in fairly good spirits emotionally. I tried to just enjoy my family as well as I could and take care of myself. I did go along to the beach-side park for the scavenger hunt, positioned myself on a bench near the entrance, and helped my team figure out some of the clues via cell phone!
I love my family very much and enjoy being with them, but these visits are so difficult for me. What helps me immensely is how supportive my mom is. She went through some serious denial when I first got sick - just couldn't accept that I could be seriously ill - and we had some rocky times. More recently, though, she's made a real effort to learn more about CFS and be supportive and it makes such a difference! Some family members still refuse to acknowledge how seriously ill I am, and that makes it very difficult to be around them. My mom really worked hard to make things easier for me this weekend, though. I'm grateful for her understanding and support because that makes it possible for me to enjoy some time with my family, and it's also so important to me that my kids get to experience these family times.
So, I survived - and even sometimes enjoyed - the holiday weekend, and we're all working on taking it easy and recovering now!
P.S. We just finished a dinner of left-overs from yesterday's Ukrainian Easter feast at my mom's - Wow! That food is SO good. Why do we only eat that meal once a year? Oh, yeah, because we'd all weigh 500 pounds if we ate like that all the time! Mmmm....