Dear Zanzabi -
I'm sorry to hear you've had such a difficult time lately and that your CFS seems to be getting worse. In some people, CFS does tend to get progressively worse, but the latest research suggests that if you're getting worse, it may be due to underlying infections that have been left untreated. have you ever been tested for Lyme disease and its co-infections? Lots of people have been misdiagnosed with CFS when they actually had Lyme - the symptoms are very similar. If you have any joint pain and/or severe cognitive dysfunction that has worsened over time, then you should definitely be tested for Lyme. here are a couple of blog posts I wrote about CFS and Lyme and Lyme testing:
(My case is less typical - Lyme was ruled out for me when I first got ill. I had CFS for 7 years and just recently got Lyme disease).
You should also be tested for common viruses that are known to reactivate in people with CFS, including EBV, HHV-6, and CMV. if you test positive for any of these, you can be treated with antivirals which should stop the progressive worsening (though the antivirals will make you feel worse at first before you improve). Here's some information on viruses and CFS:
As for treatment with HGH, I've heard of it but have no personal experience with it. It is well-known that CFS messes up the entire endocrine system. Are you being treated for the hypothryroidism? That often helps a lot. Treatment with cortisol is controversial - some think it helps; others think it doesn't help and may even be harmful.
Here's what I could find on HGH:
Several forum discussions between people on HGH:
Also, this CFS clinic uses HGH and has an article about it:
If you need help finding a knowledgable CFS doctor who can run the virus tests and also look at other potential treatments for you, here are two good databases:
I hope this information helps and you are able to finally get some relief -