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Has anyone really got comepletely healthy after ME/CFS?


Posted by MotherofMEdaughter

My daughter have been sick for now 3 years and have had the diagnose since desember 2009. We do get help here in norway, but I wanna know if it is any chance she can get comepletely healthy. 

She is 15 years old and havent been at school since she startet becoming ill in october 2007.

I would appreciate if someone could help me with how to handle the situation and if she can become good or not. Me and her could then know that this is how we haft to live our life until they find a cure.

thanks for all the replies in advance 

 
Answers (1)
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Hi, Mother of ME Daughter -

 

Your question really touched me.  I have had ME/CFS since 2002 and both of my sons have it as well, so I understand your frustrations and concerns.

 

Yes, there are people who fully recover, and recovery is more common in those who got sick as kids or teens than in adults.  That's the good news.

 

There is a lot of new and exciting reserach being done on finding the cause of ME, and most of it points to viruses.  Have you been following the research on XMRV?  If so, you might be interested in the latest summary I posted on my blog yesterday:

http://livewithcfs.blogspot.com/2010/10/nj-cfs-conference-update-on-xmrv-by-dr.html

 

If you've never heard of XMRV, you may want to start at the beginning.  Here are all of my posts on XMRV (scrolll down to the bottom, click on Older Posts until you get to October 2009, then read the posts in order):

http://livewithcfs.blogspot.com/search/label/XMRV

 

Besides XMRV, many other infectious agents have been implicated in starting ME or keeping it going.  Has your daughter been tested for common infections in ME, including Epstein-Barr Virus (EBV), HHV-6, CMV, Lyme disease, and Lyme co-infections?  All of these can make ME much worse and all are treatable (it's not a cure but can help to improve symptoms quite a bit).  I'm not sure how accessible this kind of testing is in Norway, but if it is available, it would be helpful.  Treatment with anti-virals often helps teens.

In addition, there are two main areas of treatment that can help to improve symptoms and quality of life:

 

Treating sleep dysfunction so that sleep feels normal and natural and refreshing makes everything better:

http://livewithcfs.blogspot.com/2009/09/treating-cfs-sleep-dysfunction.html

 

And treating Orthostatic Intolerance can help a lot, too.  Kids and teens often respond particularly well to this:

http://livewithcfs.blogspot.com/2010/02/orthostatic-intolerance-and-cfs.html

 

I hope this information helps to give you some hope for the future as well as some concrete areas where treatment NOW might help her.

Best Regards - 

Sue Jackson

www.livewithcfs.blogspot.com

NOTICE: The information provided on this site is not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on Wellsphere. If you have a medical emergency, call your doctor or 911 immediately.
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