Hi, Mother of ME Daughter -
Your question really touched me. I have had ME/CFS since 2002 and both of my sons have it as well, so I understand your frustrations and concerns.
Yes, there are people who fully recover, and recovery is more common in those who got sick as kids or teens than in adults. That's the good news.
There is a lot of new and exciting reserach being done on finding the cause of ME, and most of it points to viruses. Have you been following the research on XMRV? If so, you might be interested in the latest summary I posted on my blog yesterday:
If you've never heard of XMRV, you may want to start at the beginning. Here are all of my posts on XMRV (scrolll down to the bottom, click on Older Posts until you get to October 2009, then read the posts in order):
Besides XMRV, many other infectious agents have been implicated in starting ME or keeping it going. Has your daughter been tested for common infections in ME, including Epstein-Barr Virus (EBV), HHV-6, CMV, Lyme disease, and Lyme co-infections? All of these can make ME much worse and all are treatable (it's not a cure but can help to improve symptoms quite a bit). I'm not sure how accessible this kind of testing is in Norway, but if it is available, it would be helpful. Treatment with anti-virals often helps teens.
In addition, there are two main areas of treatment that can help to improve symptoms and quality of life:
Treating sleep dysfunction so that sleep feels normal and natural and refreshing makes everything better:
And treating Orthostatic Intolerance can help a lot, too. Kids and teens often respond particularly well to this:
I hope this information helps to give you some hope for the future as well as some concrete areas where treatment NOW might help her.
Best Regards -