When I was driving to the surgery, radio played Phil Collins’ Groovy Kind of Love. I used to love listening to this song. The song is longer than the trip. When I got to the car park, I didn’t want to turn it off.
I parked behind the big SUV again.
In the waiting room, there was a 3 months old baby with her mother and grandmother. The proud Mum allowed me to nurse her. The beautiful baby was lighter than my dog Basil. She was soft and peaceful, and had jewellery-like blue eyes. I probably could watch her all day long. It was my 5 minutes of heaven.
Dr TL was having another long day. He said it wasn’t really busy, but he had phone calls from hospital asking about his patients condition. These are necessary and important part of his job, but it is time consuming and he cannot charge the time.
Despite he was having long day, he was relaxed and had extra sweetness in him today. He happily told me I looked well today.
I warned him that my hearing is blocked because of ear-drops. Just in case, I need to ask him to repeat what he said over and over again. It feels like I’m in underwater and I listen with my brain instead of my ears.
The result of Echocardiogram was already in. He printed the report for me, and encouraged to read it and ask any questions. The report used lots of medical terms and based on medical common sense that I don’t know. Basically, it says my heart has no problem based on what they checked and my condition at the time of the scan. Then, there were long list of measurements.
It is a good news that I don’t have ordinary heart disease. I shall wait until the Cardiac Perfusion Persantin Thallium Scan is done to see if there is any problem in my heart. With my understanding, they check heart muscle at rest and at peak. From what I read about heart problems in ME/CFS, this scan could pick up something.
We talked about exercise, which I’m having a break due to the recent bad set backs. I was feeling okay today, but wanted to rest a bit longer to be sure that exercise would not drag me back to set backs.
He asked as a joke that I’m not walking my dog yet. I told him that we need to be patient and wait for another few years before it happens. He knew I wasn’t denying the possibility. He said he is being positive. I knew. And I also know that he is very patient.
I know the prognosis for long severe ME/CFS sufferers to get well is something like 2%. But I prepare my mind ready just in case I could be one of 2%. I don’t think about the other scenario. I just keep going with what I have. Since I have such a wonderful doctor, I wouldn’t feel lonely in the journey.
The first PFM in his office was good. So, he gave me the target and cheered. I was excited when I saw I broke the target. He was also excited and gave me high-five. Euphoria in the air.
I asked about the Vitamin D level from blood test result. It was low borderline normal. So, it is okay for me to keep taking 1,000 IU a day supplement. However, he wanted me to sit in the sun to boost the level instead of taking extra tablet. It is understandable and I would try.
When we were saying Arigato and Sayonara, he said something. I think he tried a new Japanese phrase. With the ear-drop effect and because he caught me off guard, I couldn’t quite catch it. He didn’t repeat it for me… From the atmosphere, I assume it was something nice. We shook hands and it gave me nice and warm Samurai energy.
Phil Collins’ Groovy Kind of Love played in my head for rest of the day.
When I was driving to the surgery, radio played Phil Collins’ Groovy Kind of Love. I used to love listening to this song. The song is longer than the trip. When I got to the car park, I didn’t want to turn it off.
I parked behind the big SUV again.
In the waiting room, there was a 3 months old baby with her mother and grandmother. The proud Mum allowed me to nurse her. The beautiful baby was lighter than my dog Basil. She was soft and peaceful, and had jewellery-like blue eyes. I probably could watch her all day long. It was my 5 minutes of heaven.
Dr TL was having another long day. He said it wasn’t really busy, but he had phone calls from hospital asking about his patients condition. These are necessary and important part of his job, but it is time consuming and he cannot charge the time.
Despite he was having long day, he was relaxed and had extra sweetness in him today. He happily told me I looked well today.
I warned him that my hearing is blocked because of ear-drops. Just in case, I need to ask him to repeat what he said over and over again. It feels like I’m in underwater and I listen with my brain instead of my ears.
The result of Echocardiogram was already in. He printed the report for me, and encouraged to read it and ask any questions. The report used lots of medical terms and based on medical common sense that I don’t know. Basically, it says my heart has no problem based on what they checked and my condition at the time of the scan. Then, there were long list of measurements.
It is a good news that I don’t have ordinary heart disease. I shall wait until the Cardiac Perfusion Persantin Thallium Scan is done to see if there is any problem in my heart. With my understanding, they check heart muscle at rest and at peak. From what I read about heart problems in ME/CFS, this scan could pick up something.
We talked about exercise, which I’m having a break due to the recent bad set backs. I was feeling okay today, but wanted to rest a bit longer to be sure that exercise would not drag me back to set backs.
He asked as a joke that I’m not walking my dog yet. I told him that we need to be patient and wait for another few years before it happens. He knew I wasn’t denying the possibility. He said he is being positive. I knew. And I also know that he is very patient.
I know the prognosis for long severe ME/CFS sufferers to get well is something like 2%. But I prepare my mind ready just in case I could be one of 2%. I don’t think about the other scenario. I just keep going with what I have. Since I have such a wonderful doctor, I wouldn’t feel lonely in the journey.
The first PFM in his office was good. So, he gave me the target and cheered. I was excited when I saw I broke the target. He was also excited and gave me high-five. Euphoria in the air.
I asked about the Vitamin D level from blood test result. It was low borderline normal. So, it is okay for me to keep taking 1,000 IU a day supplement. However, he wanted me to sit in the sun to boost the level instead of taking extra tablet. It is understandable and I would try.
When we were saying Arigato and Sayonara, he said something. I think he tried a new Japanese phrase. With the ear-drop effect and because he caught me off guard, I couldn’t quite catch it. He didn’t repeat it for me… From the atmosphere, I assume it was something nice. We shook hands and it gave me nice and warm Samurai energy.
Phil Collins’ Groovy Kind of Love played in my head for rest of the day.