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Finding Acceptance When You Have An Invisible Disease

Posted Nov 04 2009 10:01pm

Finding Acceptance When You Have An Invisible Disease — by Catherine Morgan

When you have a chronic illness, acceptance of your diagnosis is key to your successful treatment. But for patients with CFS, acceptance doesn’t come easily, and that’s because they are surrounded by people that minimize their condition. Even though the CDC has said that Chronic Fatigue Syndrome is as debilitating as MS and Lupus, when you tell someone you have CFS, they either assume you are lazy or that you just need to get more sleep. Everyone from medical professionals to friends and family, have advice about what you should be doing or what you are doing wrong.

A patient with CFS ends up fighting not just the disease and it’s symptoms, but also the stigma of this disease. That might not sound like a big deal…But people with chronic illness, are generally much more successful at managing their disease, when they have support from the people in their life (friends, family, doctors). However, many patients with CFS don’t have the luxury of a strong support system (or any support system at all), due to the stigma surrounding this diagnosis. For this reason, the sooner this disease is legitimized by the medical professionals, the better it will be for those of us who suffer with it.

Tides are turning, and more research is being done…Where there was once no hope, there is now a glimmer.

Read the rest of this entry »

Finding Acceptance When You Have An Invisible Disease — by Catherine Morgan

When you have a chronic illness, acceptance of your diagnosis is key to your successful treatment. But for patients with CFS, acceptance doesn’t come easily, and that’s because they are surrounded by people that minimize their condition. Even though the CDC has said that Chronic Fatigue Syndrome is as debilitating as MS and Lupus, when you tell someone you have CFS, they either assume you are lazy or that you just need to get more sleep. Everyone from medical professionals to friends and family, have advice about what you should be doing or what you are doing wrong.

A patient with CFS ends up fighting not just the disease and it’s symptoms, but also the stigma of this disease. That might not sound like a big deal…But people with chronic illness, are generally much more successful at managing their disease, when they have support from the people in their life (friends, family, doctors). However, many patients with CFS don’t have the luxury of a strong support system (or any support system at all), due to the stigma surrounding this diagnosis. For this reason, the sooner this disease is legitimized by the medical professionals, the better it will be for those of us who suffer with it.

Tides are turning, and more research is being done…Where there was once no hope, there is now a glimmer.

Read the rest of this entry »

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