Well, it’s official. I am in the throws of a crash. I’m having chills, increased pain levels and utter exhaustion. I am able to sleep about five hours a night now but I toss and turn a lot and then am usually wide awake at 7 or 8. Today, I opened my eyes and knew I was not going to get out of bed. Thankfully, I actually fell back to sleep and slept until 11.
I got up and made a cup of tea, started a load of laundry, and am back in bed. I am wiped out.
I have been thinking about how to explain the fatigue that comes with M.E./CFS for as long as I have had this blog. I just couldn’t find the right words. Until, that is, I read Laurel ‘s interview with Life Skills Magazine . It suddenly hit me (don’t ask me why it took me so long) that there is a way to explain the fatigue so that others can understand it, even if they have never been sick. More amazing I realized I can sum up the fatigue up in one word.
Are you ready? . Yup.
Today, I was thinking about how I felt like I had the mono all over again. Mono is a great description of this fatigue. It is the I that comes with mono.
So … next time someone says in response to your telling them you have M.E./CFS that they are tired too…ask them if they have ever had mono or if they understand that kind of fatigue. I have a feeling people will suddenly have an ah hah moment when they hear you and I describe the fatigue as the same as that of mono.
Best yet, most people have a frame of reference for mono and can relate.