Three days of severe migraine like symptoms decided to go today. *Phew* There is still lingering symptoms, but it didn’t get worse when I got out from the bed. I took paracetamol to keep the headache and eye pain away. And it worked. 
Just in time for the medical appointment.
Today, I parked my car at different area behind a big SUV. Therefore, the carpark man, who had a crush on me and who has been making me feel uncomfortable, cannot see it from the usual spot. He checks his PO Box after work. When he spots my car, he waits around to talk to me. If he doesn’t see my car, he wouldn’t think I’m out there.
It was a slightly longer walk from my car to the surgery, but I managed.
In the waiting room, I chat with the woman who is caring for a man in wheelchair. She is compassionate and reasonable. She had offered me her help if/when I’m out and see her around. She remembered our little chat about my condition last time. She understands the frustration of lack of awareness for ME/CFS. If there is any awareness event or project, she would like to support. It’s very nice to hear that someone who has nothing to do with ME/CFS would like to support.
So, I’m thinking I should do something at the next year’s ME/CFS awareness month. I’m thinking organising little blue ribbons, leaflet to explain about ME/CFS, and list of my preferred organisations for donation.
I explained Dr TL that I had severe migraine like symptoms for three days. He checked my eyes with light. He also listened to my chest carefully and checked if there is a sign of oedema. He happily told me everything is fine. I was relieved. I may be exaggerating, but my migraine feels like I’m having TIA. With recent heart issue, I was scared when I had new type of chest pains on top of them.
I have Echocardiogram appointment on Thursday. I hope it will tell me what is going on with my heart. It would be nice if this is just temporary.
During the migraine like attack, I felt my 2 years improvement was lost completely. The idea also made me falling into depression. Dr TL nicely re-phrased that it wasn’t lost, but just misplaced. He also pointed out that I bounced back quicker than 2 years ago. It is true, and I was out of depression just like that.
He asked what helps me during migraine. There is nothing really…, except for rest and wait. The strong pain killer knocks me out, so I can only take one tablet instead of two. With pains, vertigo, nausea, near paralysis, photophobia, numbness, tingling muscles, and etc, all I can do is just lie flat in dark room in silence, wearing sunglasses or covering my eyes.
He asked if I use ear plugs. I cannot use them because I always have pains in ears. I don’t feel pain if I don’t touch inside. I’m thinking about getting earmuffs when I have a chance.
I knew what he was going to do… He checked my ears for infection. He confirmed that they are red and prescribed ear drops. Ear drops are not my favourite medicine… They are not easy to administrate. I cannot see or feel how many drops are getting into ear, or if there is any drop at all. And the tiny bottle is too hard to squeeze. I also worried about going to the Chemist. I wasn’t sure if I was well enough to push the wheelchair by myself today. But it is best to follow doctor’s instruction, especially when the doctor is a very good one.
I commented that I don’t know what’s happening in my ears because I cannot see. And it makes me feel a little inefficient… He commented that is why he checks it. It sounded like I don’t have to do everything by myself.
It was also nice to feel that the temporary communication barrier between us had disappeared. There was good positive energy flow in the office. It made me relaxed and in peace. I sensed that everything is okay now.
I don’t know why, but the receptionist is my friend again. It is nice to have a receptionist who is willing to help me.
I slowly walked back to my car and pulled out wheelchair, and slowly moving towards the Chemist. Suddenly, the receptionist was behind me and pushed the chair all the way to the counter at the Chemist. She said Dr TL had sent her for some errands to the shops. Since I wasn’t sure I could cope with using wheelchair today, her help was more than great and was a nice surprise.
At the back of my mind, I think Dr TL send her to the shops so that she would push my chair on the way. It’s something Samurai would think of…
Three days of severe migraine like symptoms decided to go today. *Phew* There is still lingering symptoms, but it didn’t get worse when I got out from the bed. I took paracetamol to keep the headache and eye pain away. And it worked.
Just in time for the medical appointment.
Today, I parked my car at different area behind a big SUV. Therefore, the carpark man, who had a crush on me and who has been making me feel uncomfortable, cannot see it from the usual spot. He checks his PO Box after work. When he spots my car, he waits around to talk to me. If he doesn’t see my car, he wouldn’t think I’m out there.
It was a slightly longer walk from my car to the surgery, but I managed.
In the waiting room, I chat with the woman who is caring for a man in wheelchair. She is compassionate and reasonable. She had offered me her help if/when I’m out and see her around. She remembered our little chat about my condition last time. She understands the frustration of lack of awareness for ME/CFS. If there is any awareness event or project, she would like to support. It’s very nice to hear that someone who has nothing to do with ME/CFS would like to support.
So, I’m thinking I should do something at the next year’s ME/CFS awareness month. I’m thinking organising little blue ribbons, leaflet to explain about ME/CFS, and list of my preferred organisations for donation.
I explained Dr TL that I had severe migraine like symptoms for three days. He checked my eyes with light. He also listened to my chest carefully and checked if there is a sign of oedema. He happily told me everything is fine. I was relieved. I may be exaggerating, but my migraine feels like I’m having TIA. With recent heart issue, I was scared when I had new type of chest pains on top of them.
I have Echocardiogram appointment on Thursday. I hope it will tell me what is going on with my heart. It would be nice if this is just temporary.
During the migraine like attack, I felt my 2 years improvement was lost completely. The idea also made me falling into depression. Dr TL nicely re-phrased that it wasn’t lost, but just misplaced. He also pointed out that I bounced back quicker than 2 years ago. It is true, and I was out of depression just like that.
He asked what helps me during migraine. There is nothing really…, except for rest and wait. The strong pain killer knocks me out, so I can only take one tablet instead of two. With pains, vertigo, nausea, near paralysis, photophobia, numbness, tingling muscles, and etc, all I can do is just lie flat in dark room in silence, wearing sunglasses or covering my eyes.
He asked if I use ear plugs. I cannot use them because I always have pains in ears. I don’t feel pain if I don’t touch inside. I’m thinking about getting earmuffs when I have a chance.
I knew what he was going to do… He checked my ears for infection. He confirmed that they are red and prescribed ear drops. Ear drops are not my favourite medicine… They are not easy to administrate. I cannot see or feel how many drops are getting into ear, or if there is any drop at all. And the tiny bottle is too hard to squeeze. I also worried about going to the Chemist. I wasn’t sure if I was well enough to push the wheelchair by myself today. But it is best to follow doctor’s instruction, especially when the doctor is a very good one.
I commented that I don’t know what’s happening in my ears because I cannot see. And it makes me feel a little inefficient… He commented that is why he checks it. It sounded like I don’t have to do everything by myself.
It was also nice to feel that the temporary communication barrier between us had disappeared. There was good positive energy flow in the office. It made me relaxed and in peace. I sensed that everything is okay now.
I don’t know why, but the receptionist is my friend again. It is nice to have a receptionist who is willing to help me.
I slowly walked back to my car and pulled out wheelchair, and slowly moving towards the Chemist. Suddenly, the receptionist was behind me and pushed the chair all the way to the counter at the Chemist. She said Dr TL had sent her for some errands to the shops. Since I wasn’t sure I could cope with using wheelchair today, her help was more than great and was a nice surprise.
At the back of my mind, I think Dr TL send her to the shops so that she would push my chair on the way. It’s something Samurai would think of…