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CFSAC Testimony and Looking for Parents of Kids with CFS

Posted May 14 2010 7:34am
Just a quick note.

Here is a link to ALL of the testimony from the CFSAC meeting on Monday, both those were present and spoke at the meeting, as well as those like me who submitted written testimony ahead of time.  It's quite a list!  Lots of voices out there representing us - let's hope someone is listening!

Also, Annette Whittemore (yes, THAT Whittemore) is putting together some sort of public education effort on pediatric CFS and how it effects kids.  Right now, I think they're looking at a TV segment featuring Dr. Donnica Moore, a wonderful CFS spokesperson who has appeared on Good Morning America and on the Dr Oz Show and who's own teen son has CFS.

So, they're looking for parents who might be willing to share their kids' or teens' CFS stories.  I've already offered mine, based on my written testimony for CFSAC.  Please e-mail me (my e-mail link is on my profile page) if you might be interested in helping with this project.  Let's spread the word and help our kids!!
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