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Bringing More Awareness to Chronic Fatigue Syndrome

Posted Apr 11 2009 1:01am

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Chronic Fatigue Awareness Week Kicks Off May 12th

In order to recognize the debilitating effects of Chronic Fatigue Syndrome (CFS) and call attention to the millions of families affected by the disease, May 12th - May 19th has been designated National Chronic Fatigue Syndrome Awareness Month. . . . . . . .

The National Institute of Health reports CFS affects millions of individuals around the world with the largest single population of unmet medical need in the U.S. One out of every 300 Americans suffer from CFS, but currently there are no medications approved by the Food and Drug Administration for treating CFS.

Full recovery is estimated at only 5-percent to 10-percent of all patients and CFS can be as disabling as multiple sclerosis, lupus, rheumatoid arthritis, congestive heart failure and similar chronic conditions. The estimated economic impact is $17-billion in lost income and an additional $7-billion in healthcare costs. . . . . . .read full article

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Another blogger’s story of Chronic Fatigue Syndrome

This is my first personal post about being sick. A “coming-out”, to some of my online friends. And a whole lot of elaboration, for those who know I’m sick, but don’t know the details. It’s taken me ages to write, and I haven’t re-drafted it: here are my musings, in the raw.

read full post by Lauradhel

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From… Putting Chronic Fatigue Syndrome Myths to Bed

More than 4,000 published studies show that patients with CFS have underlying biological abnormalities, many of them centering on brain hormones and the autonomic nervous system, Dr. Komaroff said. In terms of clinical application, he identified three research areas as the most promising or cutting-edge:

  • Evidence that the immune system is chronically activated, and that pro-inflammatory cytokine production is increased. “This has therapeutic implications because there are a number of biologic pharmaceuticals that counter the activation of the immune system and the effect of the production of pro-inflammatory cytokines,” he said.
  • Evidence that there is something wrong with energy metabolism and the oxidative electron transport chain in mitochondria.
  • Evidence that CFS develops following several different kinds of infections, and that people with genetic vulnerability are most likely to get CFS when infected with certain kinds of infectious agents.

Genetics is an especially promising frontier in CFS research, Dr. Vernon said, pointing to 14 papers published in the April 2006 issue of the journal Pharmacogenomics which discussed findings from a CDC study in Wichita, Kan. from 1997-2001. Among other findings, researchers found that CFS is linked to five mutations in three genes that relate to the body’s ability to handle stressors. Research from the CDC and other investigators also has shown gene activation patterns that reflect a chronically activated immune system and aberrant energy metabolism. — read full article from American College of Physicians

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Also See: 

From Broken To BlogHer

Help us break freeimage from

Chronic Fatigue Awareness Week Kicks Off May 12th

In order to recognize the debilitating effects of Chronic Fatigue Syndrome (CFS) and call attention to the millions of families affected by the disease, May 12th - May 19th has been designated National Chronic Fatigue Syndrome Awareness Month. . . . . . . .

The National Institute of Health reports CFS affects millions of individuals around the world with the largest single population of unmet medical need in the U.S. One out of every 300 Americans suffer from CFS, but currently there are no medications approved by the Food and Drug Administration for treating CFS.

Full recovery is estimated at only 5-percent to 10-percent of all patients and CFS can be as disabling as multiple sclerosis, lupus, rheumatoid arthritis, congestive heart failure and similar chronic conditions. The estimated economic impact is $17-billion in lost income and an additional $7-billion in healthcare costs. . . . . . .read full article

———————————————————————————-

Another blogger’s story of Chronic Fatigue Syndrome

This is my first personal post about being sick. A “coming-out”, to some of my online friends. And a whole lot of elaboration, for those who know I’m sick, but don’t know the details. It’s taken me ages to write, and I haven’t re-drafted it: here are my musings, in the raw.

read full post by Lauradhel

——————————————————————————————-

From… Putting Chronic Fatigue Syndrome Myths to Bed

More than 4,000 published studies show that patients with CFS have underlying biological abnormalities, many of them centering on brain hormones and the autonomic nervous system, Dr. Komaroff said. In terms of clinical application, he identified three research areas as the most promising or cutting-edge:

  • Evidence that the immune system is chronically activated, and that pro-inflammatory cytokine production is increased. “This has therapeutic implications because there are a number of biologic pharmaceuticals that counter the activation of the immune system and the effect of the production of pro-inflammatory cytokines,” he said.
  • Evidence that there is something wrong with energy metabolism and the oxidative electron transport chain in mitochondria.
  • Evidence that CFS develops following several different kinds of infections, and that people with genetic vulnerability are most likely to get CFS when infected with certain kinds of infectious agents.

Genetics is an especially promising frontier in CFS research, Dr. Vernon said, pointing to 14 papers published in the April 2006 issue of the journal Pharmacogenomics which discussed findings from a CDC study in Wichita, Kan. from 1997-2001. Among other findings, researchers found that CFS is linked to five mutations in three genes that relate to the body’s ability to handle stressors. Research from the CDC and other investigators also has shown gene activation patterns that reflect a chronically activated immune system and aberrant energy metabolism. — read full article from American College of Physicians

—————————————

Also See: 

From Broken To BlogHer

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