I just don't have the mental energy to write a flowing, cohesive blog post tonight, so how about a rambling, disjointed one? (it just took me 10 minutes to think of "disjointed").
Another really exhausting week here, and Jamie and I are both in rough shape today. These last two weeks before school starts are packed full for us, mostly with medical appointments, including several out of town. So, this week, we started Craig's physical therapy (old knee problems we want to tackle before soccer season), got up early for Jamie's annual well visit, and drove to NJ and back for a visit with our Lyme doctor.
It seems that Jamie reacted badly to the two booster shots he got on Wednesday because he's been badly crashed ever since. We didn't know what was going on until last night when we noticed a big, red swollen bump on his arm. He had no reaction at all a couple of years ago to his meningitis shot, but he reacted badly to the booster this week...probably because his immune system is struggling now against Lyme plus two co-infections, in addition to the CFS. So, he's been in bad shape the past two days, exhausted with severe aches.
Normally, Jamie helps drive back and forth to NJ (about 90 minutes each way), but yesterday he felt so bad that he rode in the backseat lying down. And we usually enjoy lunch at Panera before we head back home, but this time, we just drove there, had our appointment, and got right back in the car to drive home again. By the time we got home, I was pretty exhausted, too.
My other problem is that I haven't been sleeping well this week - that's probably my main problem. I think one of my new meds (Immunovir) was overstimulating me and disrupting my sleep. It does seem to give me more energy and cut down on crashes, though. So, I reduced the dose yesterday and slept a lot better last night. Hopefully, I've got that straightened out now.
We both need to rest and recover this weekend because next week is even worse - blood tests for both boys Monday morning, more PT for Craig, a college visit Tuesday, an orthodontist appointment, Meet the Teacher night, and a trip to NYC for Jamie and I to see another doctor. The following Monday morning, Craig heads back to school, and Jamie gets oral surgery at the hospital to get all four wisdom teeth removed. The fun just goes on and on!
Time to chill out with some TV with my family...enjoy the weekend!