When my CFS specialist doctor and I were talking about Lyme when I first found out I had it, he said he can't predict the outcome of treatment with antibiotics. He mentioned some examples: one girl came to him after a few months and told him she was 80% better, another girl who was in worse shape than me has been sitting on IV antibiotics for 4 months with slow, minimal progress. So, I decided not to bet on anything and not to get my hopes up. Even if it didn't help at all, I've been ever so (painfully) slowly improving these last 2 years since seeing him and that's all that matters. So maybe in 10 years, I'll be all better ;) But either way, of course, secretly I've been hoping I'm going to be like that 80% better case :)
So, it's been almost exactly a month that I've been taking 500 mg of Zithromax (Azithromycin). Aside from it wreaking havoc on my digestive system (which has almost normalized anyway), I can confidently say that I'm a teeny tiny bit better than when I first started taking them. Am I running laps? No. Am I even able to work more hours at work? Ok, that's harder to say no to because I have in fact been working half an hour to an hour more per day (more out of necessity). Has my lifestyle changed at all? No. But, I do feel less sick from the things I'm already doing. We'll see how things go. No miracle cure, as I expected, but I am feeling a little something something which will hopefully continue and quicken in pace (knock on wood)!
I'm also halfway through this book calledHealing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections . Can I be in love with a book? Because I think I'm in love with this one! The author goes through the more technical details of infection from Lyme in the first chapter (the bio nerd in me adores that). Then he describes a core herbal protocol and an expanded herbal protocol to target specific symptoms or stages of Lyme disease. But the way he does it is what the hardcore skeptic in me adores: he lists research studies that back up the claims that he's making. He especially notes the studies that are double-blind, placebo controlled studies (results are the most trust-worthy from these types of studies). You can take the herbs he mentions with antibiotics, and some of these supplements actually act to help traditional drugs in their actions (backed up by studies). I will make a list of everything and discuss with my doc at my appointment next Friday where we check in on my progress with the antibiotics and discuss treatment options. I'll also make a post with that info once I get my act together. It seems too like the herbs he recommends are not just specific to Lyme, but chronic infection of any kind (which I'm convinced is the reason for a lot of cases of CFS). See below for more details on the book