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Christine from WI Patient Expert

Green Bay, Wisconsin
About 5 years ago I started having headaches when I would lie down that mysteriously dissapeared when I sat up. An MRI determined I had a neurological disorder called a Chiari Malformation. I tried many different prescription medications that did nothing for my pain before I was referred to a... Full Bio
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Chiari T-Shirts Etc by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation Visit my Cafe Press Store to find Chiari-related designs on T-shirts, sweatshirts, hoodies, coffee mug ... Read on »
Walk Across America - Sept. 26, 2009 by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation The Conquer Chiari Walk Across America is a series of coordinated walks held on the same day across the country in order to raise awareness of Chiari, raise money for researc ... Read on »
Chiari on TV by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation CSI/Las Vegas On an upcoming show of a new called Internal Combustion: "A kid with undiagnosed Chiari Malformation who an illegal street racer hits the back of his head ag ... Read on »
Chiari in the News by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation KWWL Televison ~ Waterloo IA Chiari Malformation Part One Chiari Malformation Part Two December 29, 2009 A brain disorder never really slowed one eastern Iowa mother unt ... Read on »
Chip Vierow by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation I am so very sad to learn that the founder of WACMA, Chip Vierow, passed away on November 6 th. He had been fighting a courageous battle with a liver disease called nonalcohol ... Read on »
Alternative Pain Management by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation If you're like me, you may be very concerned about taking prescribed pain management drugs because of the of side-effects they can cause. Long term use of over-the-counter ... Read on »
Chiari Experts by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation Finding a knowledgeable, experienced doctor to help you manage your Chiari is vitally important. I have already written this at the end of my personal story, but it bears repe ... Read on »
Online Support Groups by Christine from WI Patient Expert 1 Comment Posted in: Blog Posts in Chiari Malformation There are many online support groups and forums for people with Chiari. If you go to the Yahoo Groups Home Page and search for " Chiari" you will find over 160 groups you can ... Read on »
Area Support Groups by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation Here is a list of Chiari Support Groups I have found by researching the Internet. Please email me if you would like to add to this list or would like to change any of the info ... Read on »
Chiari Pen Pal Group by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation If you would like to join a new Chiari pen pal group, (for letters mailed the old fashioned way!) please send an email to Jodie with your name, address, age and diagnoses to c ... Read on »
Coping and Assistance by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation The Invisible Disabilities Advocate "Do your loved ones have a hard time understanding how your symptoms such as extreme fatigue, pain, dizziness and cognitive impairments ca ... Read on »
Travel Assistance by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation You may need to travel in order to see a Chiari specialist. If this is not financially possible, these organizations may be helpful: Travel Assistance National Patient Tra ... Read on »
More Free Resources by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation Songs of Love Foundation Songs of Love is a non-profit organization dedicated to providing personalized songs for children and teens facing tough medical, physical or emotion ... Read on »
Printable Information by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation Do you need printable information about Chiari to share with family and friends? Here are some good links to free downloadable documents: Chiari I Overview This 5-page do ... Read on »
Videos by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation The Chiari Institute TCI has dozens of excellent videos right on their website. Click on the "Patient Education" tab under the list of video titles. There you will see a lis ... Read on »
Videos by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation The Chiari Institute TCI has dozens of excellent videos right on their website. Click on the "Patient Education" tab under the list of video titles. There you will see a l ... Read on »
Books by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation Personal Stories: Contents under Pressure: One Man's Triumph Over Chiari Syndrome by Raphael D'Alonzo All proceeds from the sale of this book are donated to Conquer Chiar ... Read on »
Books by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation Personal Stories: Contents under Pressure: One Man's Triumph Over Chiari Syndrome by Raphael D'Alonzo All proceeds from the sale of this book are donated to Conquer Chi ... Read on »
Helpful Products by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation Adjustable Beds I am unable to lay down to sleep in a regular bed due to the pressure and pain that builds up in my head when I lay down. In fact I have spent almost 4 years ... Read on »
Helpful Products by Christine from WI Patient Expert Posted in: Blog Posts in Chiari Malformation Adjustable Beds I am unable to lay down to sleep in a regular bed due to the pressure and pain that builds up in my head when I lay down. In fact I have spent almost 4 year ... Read on »