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Christine from WI Patient Expert

Green Bay, Wisconsin
About 5 years ago I started having headaches when I would lie down that mysteriously dissapeared when I sat up. An MRI determined I had a neurological disorder called a Chiari Malformation. I tried many different prescription medications that did nothing for my pain before I was referred to a... Full Bio
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Bio

About 5 years ago I started having headaches when I would lie down that mysteriously dissapeared when I sat up. An MRI determined I had a neurological disorder called a Chiari Malformation. I tried many different prescription medications that did nothing for my pain before I was referred to a neurosurgeon. Two surgeries later I ended up experiencing the worst pain imaginable, wondering if I was going to live or die. I was hospitalized for 14 weeks due to complications. Now, after my 3rd surgery, I am permanently disabled, suffering from chronic daily pain and more Chiari symptoms then when I started. I started this blog in hopes of helping others avoid what I have been through. When I was diagnosed, I knew very little about my condition. I simply trusted my doctors to do what was best for me. I did not research Chiari until I started having life-threatening problems and was amazed at the wealth of information available. I have gathered some of those resources together and listed them here. Please don't hesitate to contact me if you have any questions or comments! cmschultz@new.rr.com