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Christine from WI Patient Expert

Green Bay, Wisconsin
About 5 years ago I started having headaches when I would lie down that mysteriously dissapeared when I sat up. An MRI determined I had a neurological disorder called a Chiari Malformation. I tried many different prescription medications that did nothing for my pain before I was referred to a... Full Bio
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Chiari T-Shirts Etc

Visit my Cafe Press Store to find Chiari-related designs on T-shirts,...

Walk Across America - Sept. 26, 2009

The Conquer Chiari Walk Across America is a series of coordinated walks held on the same day across the country in order to raise awareness of...

Chiari on TV

CSI/Las Vegas On an upcoming show of a new called Internal Combustion: "A kid with undiagnosed Chiari Malformation who an illegal street racer...

Chiari in the News

KWWL Televison ~ Waterloo IA Chiari Malformation Part One Chiari Malformation Part Two December 29, 2009 A brain disorder never really slowed...

Chip Vierow

I am so very sad to learn that the founder of WACMA, Chip Vierow, passed away on November 6 th. He had been fighting a courageous battle with a...

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Christine from WI's Whiteboard
Aug 21 2009 by Wend B
Hi Christine! Our stories are remarkably similar. I am new to this website, but I wrote my story in my bio. I had my de-tethering at TCI, and then had my decompression done there about 6 months later. Unfortunately I fell into the .003% of people that develops a pseudomeningocele after having surgery at TCI. Mine was huge. I couldn't afford to go back, and now I am in a heap load of pain and trouble. Read my bio if you want, and you can email me at wswbeager@gmail.com :) Thanks for writing out your story. I really think there needs to be much more light shed on Chiari!!
 

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