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Christine from WI Patient Expert

Green Bay, Wisconsin
About 5 years ago I started having headaches when I would lie down that mysteriously dissapeared... Full Bio
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Walk Across America - Sept. 26, 2009

The Conquer Chiari Walk Across America is a series of coordinated walks held on the same day across the country in order to raise awareness of...

Chip Vierow

I am so very sad to learn that the founder of WACMA, Chip Vierow, passed away on November 6 th. He had been fighting a courageous battle with a...

Chiari Experts

Finding a knowledgeable, experienced doctor to help you manage your Chiari is vitally important. I have already written this at the end of my...

Online Support Groups

There are many online support groups and forums for people with Chiari. If you go to the Yahoo Groups Home Page and search for " Chiari"...

Area Support Groups

Here is a list of Chiari Support Groups I have found by researching the Internet. Please email me if you would like to add to this list or would...

Latest Activity

process-indicator
Wend B wrote on Christine from WI's Whiteboard. Aug 21 2009
Christine from WI's Whiteboard
Aug 21 2009 by Wend B
Hi Christine! Our stories are remarkably similar. I am new to this website, but I wrote my story in my bio. I had my de-tethering at TCI, and then had my decompression done there about 6 months later. Unfortunately I fell into the .003% of people that develops a pseudomeningocele after having surgery at TCI. Mine was huge. I couldn't afford to go back, and now I am in a heap load of pain and trouble. Read my bio if you want, and you can email me at wswbeager@gmail.com :) Thanks for writing out your story. I really think there needs to be much more light shed on Chiari!!
 

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