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Chris H.

My name is Chris Hempel. In October 2007, my husband and I received life-threatening news about our cholesterol - but our lives weren't in danger. We learned that we were born with a defect in a critical cholesterol gene and that our precious six-year-old identical twin daughters, Addi and Cassi,... Full Bio
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Addi & Cassi Featured in an Incredible Wall Street Journal Story by Chris H. Posted in: Blog Posts in Children's Health The story (without the amazing videos, audioclips) is featured on the front page of the print version today including a ... Read on »
Children’s Cancer Clinic Opens in Reno Led By Pediatric Hematologist Oncologist Dr. Caroline... by Chris H. Posted in: Blog Posts in Children's Health Dr. Caroline Hastings with Addi and Cassi's experimental medicine called cyclodextrin Many people do not know th ... Read on »
Walgreen’s Support Allows Our Twins with Niemann Pick Type C To Receive Cyclodextrin... by Chris H. Posted in: Blog Posts in Children's Health Addi (l) and Cassi (r) will start their IV Cyclodextrin treatments at home next week after three years in a hospital s ... Read on »
Rare Disease Day Logo and Ribbons – Patient Advocates Join The RARE Team! by Chris H. Posted in: Blog Posts in Children's Health Here are the Rare Disease Day logos for 2012 from the Global Genes Project , the leading rare disease advocacy organizat ... Read on »
Is Your Disease on the RARE List™ – If So, More Bad News! by Chris H. Posted in: Blog Posts in Children's Health I wonder if people truly understand what it means if their rare disease or disorder is on the RARE List™? Last wee ... Read on »
Rare Disease Day 2012 – Spread This Call To Action To Make A Difference! by Chris H. Posted in: Blog Posts in Children's Health Call To Action: Post the 1 Million For Rare Disease logo on your website, blog, Facebook to raise awareness Wor ... Read on »
Meet The Children Who Are Resistant To Contracting Ebola, HIV-AIDS by Chris H. Posted in: Blog Posts in Children's Health My life grows more surreal by the day. Addi and Cassi's cells are resistant to deadly viruses like Ebola and HIV-A ... Read on »
Why Washington Should Support ULTRA Act (H.R. 3737) by Chris H. Posted in: Blog Posts in Children's Health It’s great to see some representatives in Washington are finally starting to understand the real healthcare issue facing ... Read on »
From The Valley of Death to The Valley of Cures – NIH TRND Program Supports Multiple Rare... by Chris H. Posted in: Blog Posts in Children's Health Thank you Dr. Francis Collins, Dr. Chris Austin, Dr. John McKew and others at the NIH who are all involved in driving th ... Read on »
Mom’s Receive EU Orphan Drug Designation From European Medicines Agency For Novel... by Chris H. Posted in: Blog Posts in Children's Health Last year, after Dr. Caroline Hastings and I received the U.S. Food and Drug Administration orphan drug designation fo ... Read on »
National Institues of Health Announces Cyclodextrin Clincial Trial For Fatal Cholesterol Disease... by Chris H. Posted in: Blog Posts in Children's Health Over the past three years, many Niemann Pick Type C families as well as physicians treating NPC patients worldwide hav ... Read on »
CureCaps Hat Project Makes First Medical Research Grants To Leading Alzheimer’s and... by Chris H. Posted in: Blog Posts in Children's Health Maike and Shelly of Johnson & Johnson sell hats to raise money for CureCaps project Soon after Addi and Cassi we ... Read on »
Procter & Gamble’s Febreze Product May Contain Active Drug Compound That Can Enter Human Cell by Chris H. Posted in: Blog Posts in Children's Health Something does not smell right over at Procter & Gamble. For more than a year, I have been trying to reach the pr ... Read on »
Mother of All Lies – Casey Anthony. RIP Caylee. We won’t forget you, Little Sweetheart. by Chris H. Posted in: Blog Posts in Children's Health Note: I normally don’t post anything on Addi and Cassi’s website that is not about their disease or something that is ... Read on »
FDA Filing Made Requesting Use of Medtronic SynchroMed Pump To Deliver Cyclodextrin To Brain by Chris H. Posted in: Blog Posts in Children's Health To say I am pumped up  today is an understatement!  We’ve reached another historic milestone in our effort to treat Ad ... Read on »
Insulin Therapy and Alzheimer’s – Could Cyclodextrin Sugar Act on Insulin and Glucose... by Chris H. Posted in: Blog Posts in Children's Health Recently reports in the news shows how insulin therapy may be a treatment for Alzheimer’s.  Basically, a low dose of ins ... Read on »
Cholesterol and Autism – Can Eggs In The Diet Save the Autistic Brain? Will SLOS Provide... by Chris H. Posted in: Blog Posts in Children's Health Will it be the Mom’s and Dad’s with children with autism who will finally help educate the public on how serious chole ... Read on »
Novartis Phase 3 cancer drug Panobinostat may correct Niemann Pick Type C cholesterol defect... by Chris H. Posted in: Blog Posts in Children's Health I almost fell off my chair a few minutes ago. I just posted a blog on news from Notre Dame and Cornell about HDAC inhibi ... Read on »
HDAC Inhibition Therapy to Stop Neurodegeneration? Notre Dame and Cornell Scientists PNAS Paper To... by Chris H. Posted in: Blog Posts in Children's Health Notre Dame and Cornell researchers are reporting a major breakthrough in Niemann Pick Type C disease research that has m ... Read on »
National Center for Advancing Translational Sciences (NCATS) Announced By National Institutes of... by Chris H. Posted in: Blog Posts in Children's Health Dr. Francis Collins wearing Denim Genes Ribbon designed by Global Genes Project Advocates: Rare Disease Day at NIH: Fe ... Read on »