Yea! After about 24 phone calls to the cranio-facial surgery scheduler over the past 2 months I finally got the call back with a date! JANUARY 7th! The kids will be on winter break until the 4th and that's Ainsley's pre-op appointment date. I think there is a pretty good chance of keeping her well if we are all away from school for 2 weeks prior. And I'll keep her home from school that week. I'm hoping nothing else goes wrong with this date.
I feel a little weird about being so excited when I know she's going to be going through something so awful. But that's life when you have a child with a lot of medical issues. I'm not sure at what point I stopped being heartbroken when she needed a surgery. But this is a better place to be, mentally, since it has to be done.
My hope is that putting in eyebrow prosthetics will raise her eyelids back more in line with where they were at prior to her second cranial reconstruction back in July 2007. Even though the ophthalmologist says she has good acuity (sight) despite the ptosis but I'm pretty sure having your eyes mostly covered for the majority of the hours of the day must have some effect on how much one can see. This surgery may not work but the brows need to be reconstructed before she has the next eye surgery. I'm hoping it will increase her field of vision in addition to the cosmetic changes.
So Ainsley will be sporting a shaved head again come January. Good thing it's hat season don't you think?
I feel a little weird about being so excited when I know she's going to be going through something so awful. But that's life when you have a child with a lot of medical issues. I'm not sure at what point I stopped being heartbroken when she needed a surgery. But this is a better place to be, mentally, since it has to be done.
My hope is that putting in eyebrow prosthetics will raise her eyelids back more in line with where they were at prior to her second cranial reconstruction back in July 2007. Even though the ophthalmologist says she has good acuity (sight) despite the ptosis but I'm pretty sure having your eyes mostly covered for the majority of the hours of the day must have some effect on how much one can see. This surgery may not work but the brows need to be reconstructed before she has the next eye surgery. I'm hoping it will increase her field of vision in addition to the cosmetic changes.
So Ainsley will be sporting a shaved head again come January. Good thing it's hat season don't you think?