Update: Dylan's hanging in there, waiting on surgery

Yesterday was a week since we came home from the hospital, the irrigations are torture but are helping Dylan so much. He is back to his normal weight of 36 lbs (he was a little over 40 when he was sick, probably from the stool backed up for so long). Ive come to realize the irrigations arent so bad as long as I can keep him occupied with something else, and I know its needed so I just have to put on my brave face and talk positive to him. He is truly a big boy, and hes being so brave and happy considering the problems hes had.

Other than that we are preparing for the holidays, the kids are getting really excited for Christmas. And I know "Santa" is gonna bring some good gifts and Dylan will get to take some of them with him to occupy him while hes in the hospital. So as of right now, we are 21 days away from heading out to Cincinnati.....nervous of course, but hoping everything continues to go smooth until then.

Best wishes to you all!