Checking in to say we are all fine. Had a busy week so hence the lack of blog posts. I also work full time but squeeze it all to 3 or 4 days so I do disappear from time to time :)
Half term week didn't go to plan. Both Ian and I ended up with a vomiting bug at the beginning of the week but some how Sophie managed to avoid it. Huge blessing due to her not being able to be sick!
She did manage to have some fun with her nan and I was able to take her for a good run around in her favourite indoor play centre as the weather was shockingly cold and wet. Her green eye boogers have gone and her eyes are back to their normal sparkly selves.
I have several things to discuss including the results of the Vertex drug trials and a load of blog awards to dish out. Thank you to everyone who has given them to us.
We have CF Clinic tomorrow so will let you all know how that goes and please keep us in your thoughts for a non eventful appointment, and nothing too troublesome from the culture result.
Sophie was back at school today but having to miss tomorrow due to clinic. This is a highly disjointed post but I promise normal service will resume tomorrow.
Will leave you with a few pictures of Soph having fun last week.
I'll leave it here as Ian and I are about to change Sophs Mic-key button, it appears to have sprung a leak and is about to fall out at any given moment. Wish us luck as Soph is usually sedated for this due to her traumatised brain.
Best case scenario, we'll be in bed for about 10.30.
Worse case scenario, we'll be at the hospital until the early hours of tomorrow.
Half term week didn't go to plan. Both Ian and I ended up with a vomiting bug at the beginning of the week but some how Sophie managed to avoid it. Huge blessing due to her not being able to be sick!
She did manage to have some fun with her nan and I was able to take her for a good run around in her favourite indoor play centre as the weather was shockingly cold and wet. Her green eye boogers have gone and her eyes are back to their normal sparkly selves.
I have several things to discuss including the results of the Vertex drug trials and a load of blog awards to dish out. Thank you to everyone who has given them to us.
We have CF Clinic tomorrow so will let you all know how that goes and please keep us in your thoughts for a non eventful appointment, and nothing too troublesome from the culture result.
Sophie was back at school today but having to miss tomorrow due to clinic.
This is a highly disjointed post but I promise normal service will resume tomorrow.
Will leave you with a few pictures of Soph having fun last week.
I'll leave it here as Ian and I are about to change Sophs Mic-key button, it appears to have sprung a leak and is about to fall out at any given moment. Wish us luck as Soph is usually sedated for this due to her traumatised brain.
Best case scenario, we'll be in bed for about 10.30.
Worse case scenario, we'll be at the hospital until the early hours of tomorrow.
Take care all.
xxx