Tomorrow we start Hannah’s workup for her atrial septal defect (hole in the heart) that was discovered when we were at the National Institutes of Health in July. It “most likely” has nothing to do with her Gaucher’s Disease, but we need to deal with it anyway.
She is having a sedated echocardiogram tomorrow morning.
I’m very anxious about it. I know it is “just” oral sedation, but how the heck are they going to get her to swallow it? This is my control freak daughter here, who rarely even lets me put a syringe in her mouth for other medicine!
Then, I’m hoping, hoping, hoping that the ASD resolved on its own in the past three months. Everything I have read says that unless the ASD is pretty serious, it can be monitored for the first few years of life to see if it will close on its own.
So Tuesday AM is the sedated echocardiogram and Wednesday AM is the consultation with the cardiologist to find out what the echocardiogram shows.
I’m hoping it is already closed so we can not worry about this and file this diagnosis away!