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This & That!

Posted Aug 10 2009 4:32pm
I was reading on Kaitlyn's blog today about the FDA approving a new transcatheter valve replacement. Basically meaning that transcatheter valve replacements for RVOTO (right ventricular outflow tract obstruction - usually associated with ToF) patients would be approved for the US. I'm so giddy, because this means that Vaeh wouldn't have to anymore open heart surgeries! Can you say... WOO HOO?!?!?!?! Click here to read the article about the device. They even show a picture of the valve & the catheter that they use to place it.

Things around here are going okay. We've had some frustration with Jon's upcoming physical for his employer. Since he has a commercial driver's license (CDL) he has to have a physical every year. Its been quite a headache in the past as he has sleep apnea. They really crack down on drivers who have this. So, Jon has to sleep with a CPAP & has to have the machine "down-loaded" every year so that they will pass him to drive. Well, he went up on Friday last week & found out that they aren't going to accept things this year without a "maintenance of wakefulness" test. Basically he has to go up to the sleep clinic, they wire him up to monitor him while he sits in a dimly lit room for 40 minutes. During that time, he's not allowed to sing, talk, etc., to try to stay awake. Basically he has to stay completely still & not fall asleep! If he falls "asleep" for more that 10 seconds... he would fail. Lets just say this has been a big thorn in our side. The one good thing is that Daddy has been home since last Wednesday night!!

The girls are doing really well:0) Gabby is getting really excited about starting kindergarten. She's got until September to wait, though, so I think its going to be a long month of August! Miss Vaeh is doing great!! She's really enjoying being able to get outside & play this summer. This is really the first year that she hasn't had to stay inside, so she's getting her fill of the great outdoors!

This past weekend we were finally able to go for our photo shoot with the Littlest Heroes Project. It was a wonderful day! The photographer that we were connected with (Amanda McKinley from Mom-A-Razzi photography ) was great to work with. She did an great job of getting the girls into different areas to get shots of them! She even included Gabby, taking bunches of shots of the girls together & one or two of just Gabby! We had the session at the Franklin Park Conservatory in Columbus & it was beautiful!! The girls really loved the "butterfly room". We did pictures both inside the conservatory & outside, once the clouds/rain passed. Then it was onto the Spaghetti Warehouse for dinner before coming home - yummy!! As for the photos... Amanda said that she would have a CD of them to me in about 2 weeks. So once I get them, you can bet that I'll be sharing them!!

On a fun side note, one of my blogging friends Amber (Gracie B's Momma) & her family had a very exciting weekend, too! They were able to bring the newest member of their family home from the NICU!! They are in the process of adopting little Mr. Jacob & he's just as cute as could be! Pop on over the their blog to see pictures of their family!

Thanks for stopping in to check up on us (when I finally get around to posting;0) )! We really love you all!

PS - Please keep McMama, Stellan & their family in your prayers. Stellan is not doing well & is on his way to Boston again:0(
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