I know most days this blog is about Brooklyn but today's post is about Charlie. I know many of you that read this blog have been worried about him and praying for him so I wanted to update everyone.
Charlie was diagnosed last week with
Behcet's Disease. I guess we are just a "rare disease" family. About 5 out of every 100,00 people have it! Ugh, aren't we lucky. It is an
autoimmune disease that causes
inflammation of the blood vessels basically - although it is much more complicated than that really.
One of Charlie's worst symptoms is the
arthritis /joint pain - he has been off work for 4 weeks now. He hates being off work and is SO ready to be back but physically he is just not ready. But, we are glad to finally have a diagnosis and a treatment plan!! He has seen over a dozen doctors over the past year so having an answer is truly an answer to prayer. Over the past few days the symptoms seem to actually be getting worse instead of better, I am not sure if that is typical at the start of treatment or not but we will be checking with his
Rhemuatologist first thing in the morning.
For those of you who like me have never heard of
Behcet's I did find this description online:
Behçet disease is a complex, multisystemic disease that includes involvement of the mucocutaneous, ocular, cardiovascular, renal, gastrointestinal, pulmonary, urologic, and central nervous systems and the joints, blood vessels, and lungs. I know...does not sound like much fun does it?!?!
We are hanging in there......I am pretty exhausted with the pregnancy, Brooklyn, and Charlie so please keep us ALL in your prayers!
Charlie was diagnosed last week with Behcet's Disease. I guess we are just a "rare disease" family. About 5 out of every 100,00 people have it! Ugh, aren't we lucky. It is an autoimmune disease that causes inflammation of the blood vessels basically - although it is much more complicated than that really.
One of Charlie's worst symptoms is the arthritis /joint pain - he has been off work for 4 weeks now. He hates being off work and is SO ready to be back but physically he is just not ready. But, we are glad to finally have a diagnosis and a treatment plan!! He has seen over a dozen doctors over the past year so having an answer is truly an answer to prayer. Over the past few days the symptoms seem to actually be getting worse instead of better, I am not sure if that is typical at the start of treatment or not but we will be checking with his Rhemuatologist first thing in the morning.
For those of you who like me have never heard of Behcet's I did find this description online:
Behçet disease is a complex, multisystemic disease that includes involvement of the mucocutaneous, ocular, cardiovascular, renal, gastrointestinal, pulmonary, urologic, and central nervous systems and the joints, blood vessels, and lungs. I know...does not sound like much fun does it?!?!
We are hanging in there......I am pretty exhausted with the pregnancy, Brooklyn, and Charlie so please keep us ALL in your prayers!