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Posted Mar 22 2011 10:47pm
Such a sweet looking little boy, about the same age as my oldest son. I can't imagine having to go through something like this. One day having a happy, healthy thriving six year old to waking up the next day&finding him unresponsive and having seizures. Scary the things that can happen to people without any warning.
Thankfully the high media attention to Baby Joseph may have helped play a role in the doctor's changing their opinion on Noah. At first they refused to give Noah his tracheotomy, which is considered standard procedure in cases like this. Yet when the parents went to discuss plans for a future tracheotomy a new doctor was assigned to his case and told them it would not be feasible.
Through the help of a lawyer, Noah's parents were able to finally convice the doctor to perform the surgery. The doctor and hospital were forced to go against their 'quality of life' policy and gave Noah the tracheotomy he needed. Since the surgery Noah is reported to be breathing on his own with the breathing tube in his throat. However, he is still comatose and it is not known whether he will 'awake' again, but his parents are hopeful and praying for a miracle.
I hope you will join me, his family and thousands of others and pray for Noah's full recovery soon.
Noah Facecchia prior to the sudden seizures that hit in early January.
To join the ‘Prayers for Noah Facecchia’ Facebook page, click .
TORONTO, Ontario, March 22, 2011 ( LifeSiteNews.com ) – In stark contrast to the treatment of dying baby Joseph Maraachli, a Toronto hospital last week granted a family’s wish by performing a tracheotomy on their six-year-old, who is in a similar state as baby Joseph.
Noah Facecchia had been unconscious and on a ventilator at the Toronto Hospital for Sick Children since January 9th. However, his father Tony said today that with the support of his doctors, he has now been breathing on his own since 9:00 a.m. Monday, except for a break last evening.
Noah, who was a healthy, active, and intelligent six-year-old, who loved soccer, swimming, and karate, had laughed and joked with his parents, Tony and Sonia, and little sister before going to sleep happily on January 8th.
However, his father was shocked the next morning when he returned to find Noah non-responsive and in the midst of a seizure. He hasn’t woken up since.
“I had no idea that my healthy boy would wake up one day and not be healthy anymore,” says Tony Facecchia.
Since January 9th, Noah has been experiencing generalized seizures lasting five to 30 minutes, with breaks of five to 10 minutes. He has been diagnosed with idiopathic refractory epilepticus, but doctors have failed so far to find the origin of the seizures, and say he is unlikely to survive.
The hospital had agreed to perform the tracheotomy, which is a simple procedure involving a slit in the throat to allow a breathing tube to be inserted into the airway. The surgery is recommended in cases of prolonged ventilation because it allows for suction of fluid out of the lungs, creates a safe and stable way to use a mechanical ventilator, and is more comfortable for the child.
But the parents were shocked earlier this month when they learned that a new doctor on the case was refusing the procedure. He said they would remove Noah’s tube instead.
“They were pretty adamant about that all of a sudden,” said Tony. “We were going to the meeting thinking we’re going to discuss a time for this tracheotomy to happen, and all of a sudden they pull a 360 and say ‘No, we’re not going to do it anymore.’”
They had also learned earlier that the doctors put a ‘do not resuscitate’ order (DNR) into Noah’s file without consulting them.[my emphasis]
Building off the momentum created by the case of Joseph Maraachli, whose Facebook page has grown to 15,000, Tony launched his own Facebook page calling for prayer. So far, they’ve attracted over 2,000 supporters. The Facecchias got the help of a lawyer, and continued to advocate for their son.
Noah’s supporters breathed a sigh of relief Friday morning when Tony announced that the doctors had changed their mind and performed the tracheotomy. “I think they’re back in the game of seizure control,” he told LifeSiteNews.
“At the time, it felt like they had given up on him a little bit, a few weeks back.”
“[The doctor] basically said, ‘I’m not doing this for Noah. I don’t think this is in his best interests. I’m doing it for you, for the parents,’” said Tony.
The DNR remains, but it has now been clarified so that it only applies if Noah’s heart stops beating. “If he’s deteriorated so much that his heart doesn’t work anymore, they won’t pump his chest,” Tony explained. “I believe that’s reasonable, as long as they try everything they can for him not to get that way, and they assured us that they will.”
Read More...To join the ‘Prayers for Noah Facecchia’ Facebook page, click .