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The calm before the storm?

Posted Jul 16 2010 8:28am
Hello all

Just a quick mini update before clinic next week.
We appear to have Sophies constipation under control, which means it was hopefully related to the heat we have been experiencing over the last few weeks. Sophie is back to her usual happy self now and back enjoying nursery.

Sophies lovely CF nurse sent us some emla cream and some dressings through the post ready for her dreaded port flush on Tuesday. The plan is for us to put the emla on when we leave and then to go straight to her CF ward to have the flush done there. If for any reason Sophie freaks out at the emla and dressing then we are to remove it to limit any more trauma. If this happens i'm not sure what the back up plan actually is!!

If the flush goes well and Sophie isn't too upset we will then travel up to the outpatients department to have the rest of her CF clinic appointment and see how things are chest-wise. This is also where I will be begging the team to help us sort out the ongoing saga of her button changes once and for all. Please send lots of postive vibes our way next week!

On a brighter note, Sophie seems really very well at the moment and i'm so hoping her cough swab next week is still clear of pseudomonas.

In other news, we had our meet up for our feeding support group this week and was really really pleased with the amount of people that showed. It was lovely to meet up with other people going through the same problems and totally understand what you are going through. You can read more about it on the feeding problems blog willmychildevereat (on my links list).

Please send some positive thoughts to an American friend of mine Suzanne, she has a daughter with CF also and is one of the nicest people I know. She's had quite a tough time lately with her own personal health and I wish her the speediest of recoveries. Sending you much love!

Take care everyone

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