This foundation started as a passing thought, one fueled by my own journey with Brayden and the outpouring of support and guidance I found from people that began as strangers and now are family; but with many hours of committed work by some pretty amazing people... it has proven to be far more successful in its short existence, than any of us had ever imagined.
So many people have supported our mission and helped us to grow, others have donated their personal time and talents by being active on our organized committees... but first, I have to thank the ladies who have stuck through everything as current members of the board of directors:
I know that things have been more than challenging & we have struggled through the pains of learning as we go... but you all do so much to help make things work for the foundation, not to mention as hydran-mommies yourselves. I am so eager to see where we go in the months to come, thank you for your continued commitment and your many hours of work to get things running as smoothly as possible.
"Volunteers are the only human beings on the face of the earth who reflect this nation's compassion, unselfish caring, patience, and just plain loving one another." ~Erma Bombeck
And our committee volunteers have worked tirelessly as well... researching, writing, coding web sites, maintaining databases, creating merchandising options, balancing numbers, learning all things non-profit, etc... all while offering support and guidance to families across the globe through our various social and print media platforms.
"How wonderful it is that nobody need wait a single moment before starting to improve the world." ~Anne Frank
~Sarah Garcia~Jessica Zuchowski~Donna Kalmon~Heidi Thompson~Jennifer Bauer~Devoney Wolfe~Dru Springer
By no means is this an all-inclusive list of the many hands who have helped us on this journey, it would be impossible to list every name that has inspired, motivated, guided, and held us up when times have been tough. Please know, every effort you make has changed a life... no matter how big, or how small.
"How far that little candle throws his beams! So shines a good deed in a weary world" ~David Seltzer
We also cannot forget to thank those who have donated product and/or services to our cause, especially our friend Sonya Peterson at SonyaRita Designs who donates 50% of all sales on personalized awareness jewelry to GHF. As well as those independent sales consultants who have had fundraisers in support of GHF as well...
"Act as if what you do makes a difference. It does." ~William James
And we are by no means done... so much more room to grow and talent to be used. If you are interested in donating either time or talent to helping our foundation reach its mission, email me at President@HydranencephalyFoundation.org for more information.
MISSION: Through the Global Hydranencephaly Foundation, a greater passion will be shared as families are networked across the globe to ensure every child given this diagnosis has the opportunity to live and thrive in the quality of life they deserve. Families will be offered support, information, guidance, and resources. Through education and awareness campaigns, the medical community will become enlightened to the possibilities that exist for these children and the world will learn to accept this condition as simply an obstacle in the lives of these little miracles.
"Unless someone like you cares a whole awful lot, nothing is going to get better. It's not." ~Dr. Seuss