Steve Catoe , a 44-year old tricuspid atresia survivor, avid advocate for congenital heart disease, and giver of hope to so many families, passed away today. Here is an email he wrote to Luke back in February of 2009
Just a quick note to see how you are doing and to say hi! I live wayyyyyy over here in South Carolina ... get your dad to show you SC on a map!
I'm 42 and have a single ventricle just like you do! We're pretty special, not everybody gets to be a Cardiac Kid! And what's even better, I know a *lot* of grown ups with heart defects - we aren't rare anymore!
But you gotta take care of yourself first - keep your heart strong so it can keep on going! So get outside and play! And drop by my blog any time you want to!
Thank you, Steve, for all the encouragement shared, knowledge passed and good done for the CHD community. Thank you for showing your scars and showing other families that life with a funky heart is a good life indeed.