Since my last post Ava has been admitted and discharged 3 more times. It's been a rough month for illness for her. She's been out since Thursday and is on antibiotics. Immunology was consulted and they think her immune issues are secondary to Mitochondrial disease. All the specialists are quick to blame all her problems on Mito. It's annoying. She has an appt with Dr Kendall in Atlanta in July. I am actually excited for this because we might get some answers. Just talking to Dr Kendall's husband made me feel so much better. Ava's special needs pediatrician has known Dr Kendall for many years and has worked with her. They have a good working relationship, which is great!
Summer has started here in full force. Our pool is busy as ever. I am hoping for an easy, hospital free June. We are just all exhausted and need a break.