Please bear with me, I’m writing this on my phone! Today was an amazing God filled day, prayers were definitely felt and answered today! We saw 8 professionals at Seattle Children’s. The third doctor was saw was Dr. Judith Hall, if you don’t know, she’s an AMC guru, she’s the one who literally wrote the book on AMC! She had no idea that we were there today to specifically see Dr. Song about Jackson’s lowers, and after talking with her about genetics, the first words out of her mouth were, “so what are y’all going to do about his legs?”! I told her we had just seen Dr. Song & discussed doing a soft tissue release on his knees & hips &a rotational osteotomy on his knees! Her response “good & are you going to do it here?” I told her yes & she responded “good”!
Dr. Song believes and Dr. Hall agrees that if we do this surgery, Jackson will be a “home ambulator” and “possibly a community ambulator”! We are believing for community ambulation! So, we return home tomorrow & start talking as a team with our home providers & decide on time frames and next steps!
I know all the prayers so many prayed for us and/or over us worked, God gave Dr. Hall those words! Thanks again!