Are you still dealing with this? My son is six now and we are dealing with what you're going through. We have been to a JRA Specialist, Infectious Disease, and an ENT specialist. Did she have an EBV infection?
SHE DID HAVE SHEGELLIA ABOUT 6 WEEKS BEFORE HER FIRST FEVER BREAKOUT, I QUESTIONED DOCTORS IF THAT COULD HAVE CAUSED SOME KIND OF IMMUNE PROBLEM. THEIR RESPONSE WAS IT SHOULD NOT HAVE ANY THING TO DO WITH IT BUT MY MIND KEPT THINKING ABOUT IT. OUR JRA SPECIALIST AND MY LOCAL PEDS OFFICE DECIDED TO CLASSIFY HER AS "PERIODIC FEVER SYNDROME". OUR JRA SPECIALIST SUGGESTED TAKING HER TONSILS OUT (THE DR. HAD FOUND A STUDY SHOWING THAT IT HAD HELPED SEVERAL KIDS EVEN THOUGH THEY HADN'T HAD ANY PROBLEMS WITH THEIR TONSILS BEFORE. SHE HAD NEVER HAD A RED OR SORE THROAT.....WE TOOK HER TONSILS OUT 1-4-10, SHE HAD A FEVER 6 WEEKS LATER AND HER THROAT WAS BROKE OUT IN ULCERS PAST WHERE THE TONSILS HAD BEEN, WE THINK THE ULCERS WERE HIDDEN BY THE TONSILS THE ENTIRE TIME.....BUT BUT BUT THEY BEGAN TO GO AWAY....WE HAD FEVER EVERY 6 WEEKS FROM FEB - SEPT THEN ALL OF A SUDDEN, NOTHING.....THANK GOD!!! WE HAVE BEEN FEVER FREE SINCE HER BIRTHDAY IN SEPT...YA YA YA...SHE IS A BEAUTIFUL, SPUNKY LITTLE 4 YEAR OLD AND YOU CAN'T TELL SHE EVER HAD 2 AWFUL SICK YEARS...IF I CAN HELP YOU ANY MORE PLEASE JUST ASK....MY PRAYERS ARE WITH YOU AND YOUR FAMILY...JUST KEEP PRAYING...GOD HEALS...HE IS SURELY WHO GOT US THROUGH THESE SICK YEARS...GOD BLESS AND MERRY CHRISTMAS
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