Health knowledge made personal
Join this community!
› Share page:

RECURRENT FEVERS WITH LYMPH NODE SWELLING


Posted by CCRAFT5

WHAT CAUSES RECURRENT HIGH FEVERS EVERY 6 WEEKS.  MY DAUGHTER JUST

TURNED 3 YESTERDAY AND WE HAVE BEEN HAVING THIS PROBLEM SINCE SHE

WAS 18 MONTHS OLD.  SHE STARTED OUT WITH A HIGH FEVER AND SWELLING

OF A LYMPE NODE UNDER HER RIGHT EAR WITH NO ILLNESS SYMPTOMS, SPIKED

105* TEMP IN NO TIME, WE SPENT 7 DAYS IN HOSPITAL, ALL CBC LEVELS WERE

ELEVATED BUT COULDN'T FIGURE OUT WHAT WAS WRONG.  EXACTLY 3 WEEKS

LATER WE WERE BACK IN THE HOSPITAL FOR ANOTHER 7 DAYS, 6 WEEKS LATER

AGAIN, AND THEN ANOTHER 6 WEEKS LATER WE SPIKED 106.2* IN THE

DOCTORS OFFICE - IMMEDIATELY ADMITTED, STILL NO SYMPTOMS JUST HIGH

FEVERS SUDDENLY, 1 DAY LATER LYMPE NODE SWOLL UP AGAIN.  THEY DID

EMERGENCY SURGERY TO REMOVE NODE, HOPING THIS WOULD FIX OUR

PROBLEM BUT 6 WEEKS TO THE DAY WE STARTED OUR FEVER AGAIN AND

SWELING WHERE THE "NODE IS NO LONGER".  PEDS OFFICE REFERRED US TO A

REHMATOLOGIST & INFECTIOUS DISEASE DOCTOR BUT EVERYTHING STILL

NEGATIVE ON SPECIALIST TESTING.  THEY HAVE TESTED US FOR MEDITERRIAN

FEVER PANEL AND STILL NO ANSWERS.  THEY SAY WE HAVE BEEN TESTED FOR

EVERYTHING MEDICALLY KNOW.  SHE HAS BEEN TAKING A ANTI-INFLAMMATORY

FOR ALMOST A YEAR WHICH HAS DECREASE OUR DAYS OF FEVER DOWN TO 3-4

DAYS BUT SHE STILL IS ON 6 WEEKS & NODE AREA IS SWELLING ALITTLE MORE

EVERY TIME.  SHE HAS ALSO BEGAN TO HAVE PAIN IN HER JOINTS KNEES,

ELBOWS, BASE OF HEAD AND SHOULDER AREAS.  SED RATE USUALLY RUNS B/W

40 - 55, C-REACTIVE 7.5 - 25 AND WBC 20,000 - 35,000 DEPENDING ON WHAT

STAGE WE ARE DURING FEVER DAYS.  I KNOW I HAVE MISSED A FEW THINGS

BUT HOPING YOU CAN GIVE SOME INSIGHT ON WHAT TO LOOK AT.

 
Answers (2)
Sort by: Newest first | Oldest first
Are you still dealing with this? My son is six now and we are dealing with what you're going through. We have been to a JRA Specialist, Infectious Disease, and an ENT specialist. Did she have an EBV infection?
SHE DID HAVE SHEGELLIA ABOUT 6 WEEKS BEFORE HER FIRST FEVER BREAKOUT, I QUESTIONED DOCTORS IF THAT COULD HAVE CAUSED SOME KIND OF IMMUNE PROBLEM.  THEIR RESPONSE WAS IT SHOULD NOT HAVE ANY THING TO DO WITH IT BUT MY MIND KEPT THINKING ABOUT IT.  OUR JRA SPECIALIST AND MY LOCAL PEDS OFFICE DECIDED TO CLASSIFY HER AS "PERIODIC FEVER SYNDROME".  OUR JRA SPECIALIST SUGGESTED TAKING HER TONSILS OUT (THE DR. HAD FOUND A STUDY SHOWING THAT IT HAD HELPED SEVERAL KIDS EVEN THOUGH THEY HADN'T HAD ANY PROBLEMS WITH THEIR TONSILS BEFORE.  SHE HAD NEVER HAD A RED OR SORE THROAT.....WE TOOK HER TONSILS OUT 1-4-10, SHE HAD A FEVER 6 WEEKS LATER AND HER THROAT WAS BROKE OUT IN ULCERS PAST WHERE THE TONSILS HAD BEEN, WE THINK THE ULCERS WERE HIDDEN BY THE TONSILS THE ENTIRE TIME.....BUT BUT BUT THEY BEGAN TO GO AWAY....WE HAD FEVER EVERY 6 WEEKS FROM FEB - SEPT THEN ALL OF A SUDDEN, NOTHING.....THANK GOD!!!  WE HAVE BEEN FEVER FREE SINCE HER BIRTHDAY IN SEPT...YA YA YA...SHE IS A BEAUTIFUL, SPUNKY LITTLE 4 YEAR OLD AND YOU CAN'T TELL SHE EVER HAD 2 AWFUL SICK YEARS...IF I CAN HELP YOU ANY MORE PLEASE JUST ASK....MY PRAYERS ARE WITH YOU AND YOUR FAMILY...JUST KEEP PRAYING...GOD HEALS...HE IS SURELY WHO GOT US THROUGH THESE SICK YEARS...GOD BLESS AND MERRY CHRISTMAS
NOTICE: The information provided on this site is not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on Wellsphere. If you have a medical emergency, call your doctor or 911 immediately.
Post an answer
Write a comment: