i took asher to see our amazing dr b this afternoon. turns out, asher has lost all the extra fluid weight, and is back down to his 15 kg (33 lbs), where he belongs. the puffiness is gone, the sweating is gone, the warmth is gone, the shortness of breath is gone. his colour is back, his energy is back. his liver is back up where it should be. all of this means
no more failure!!!!
one little lingering issue to keep an eye on, however. asher's blood pressure is quite low. his norm is around 120/80, but this afternoon it was 86/54. she called dr russell in toronto, and we're going back to paeds on thursday for follow-up.
we also have a date for our rescheduled appointment in toronto. next wednesday (april 6) we will be heading off to toronto. we'll meet with someone from the Congenital Heart Surgeons' Society to fill out some forms for the LVOTO (left ventricular outflow tract obstruction) study, then off to the echo lab. we'll see dr russell, then down the hall to the pacemaker clinic. a long morning, but hopefully it will be productive.
for the bad news...
we found out today that our favourite cardiologist in london
is moving back to germany.
i don't quite have words right now, so i'll leave it at that for now. i'll comment when i have something useful to say.
anyhoo, that's the day. thank-you all so much for your prayers over the weekend. as you can see, prayer works!!! :)