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Purple Day

Posted Mar 27 2011 10:27am
Purple day was actually yesterday, but it's never too late to spread a little awareness... Here's what Purple Day is:

"Purple Day was founded in 2008, by nine-year-old Cassidy Megan of Nova Scotia, Canada, with the help of the Epilepsy Association of Nova Scotia (EANS). Cassidy chose the colour purple after the international colour for epilepsy, lavender. The lavender flower is also often associated with solitude, which is representative of the feelings of isolation many people affected by epilepsy and seizure disorders often feel. Cassidy's goal is for people with epilepsy everywhere to know they are not alone." 

Pretty big undertaking for a 9-year old, to raise more awareness of a condition that affects over 50 million individuals around the globe! Not only is it a condition on it's own, but there are so many variations and types as well... I've blogged a few times regarding seizures and our experience with them on Brayden 's journey with hydranencephaly:

~our initial experiences, with associated research HERE
~more research with SUPPLEMENT INTERVENTION  
~ Brayden 's journeys to "space" with ABSENCE SEIZURES  
~the seemingly "impossible" BRAINSTEM SEIZURES
~yet another fear, fear in the joys of hearing him laugh GELASTIC SEIZURES

Since those posts, it has been confirmed via EEG that he is having absence seizures as well as generalized tonic-clonic seizures (Grand Mal)... both very scary... and somewhat controlled by diazepam for the time being. This reoccurance of seizures = another diagnosis of EPILEPSY.

Epilepsy is a condition of the brain that is characterized by recurrent seizures. Approximately one in ten people will experience at least one seizure during a lifetime. A single seizure, however, is not epilepsy. Epilepsy is a condition that is defined by multiple seizures.

Epilepsy is a seizure disorder. It is not a psychological disorder nor a disease and it is not contagious. The brain is made up of billions of nerve cells or neurons that communicate through electrical and chemical signals. When there is a sudden excessive electrical discharge that disrupts the normal activity of the nerve cells, a seizure may result.

Seizures cause a change in function or behavior. A seizure may take many different forms including a blank stare, muscle spasms, uncontrolled movements, altered awareness, odd sensations, or a convulsion. The location in the brain of the abnormally discharging nerve cells determines the form the seizure will take. Seizures may occur rarely or as often as numerous times a day. If the condition is successfully controlled by medication, a person may be seizure free.

Epilepsy is one of the most common chronic neurological disorders. An estimated 50 million people worldwide have epilepsy. That means approximately one percent of the general population has epilepsy.

Epilepsy can be present at any age although its onset is most often in childhood or in the later years of life. Sometimes those who develop seizures during childhood outgrow their seizures. In the elderly, there is an increased incidence due to strokes and aging of the brain. In more than half of those with epilepsy, seizures can be well controlled with seizure medication.

Around the globe organizations exist to assist in networking and raising awareness of this condition, you can find your local contact information HERE .

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