Today we spent day 2 in outpatients having lots more fun. Following on from Tuesday, Sophie happily had her height done several times measuring in at 92cm, and also sat on the scales without the help of the whoopie cushion. Sounds really trivial but I honestly cannot emphasise how big of a breakthrough this is.
We also got Soph to lie on the couch in the department and she even let us listen to her chest-this is HUGE. The plan now is for Sophie to always use the same room at clinic appointments so she has a 'safe' environment. We are totally avoiding all rooms where she has had negative experiences, i'm really happy with this.
Port flush in a week and a half, the first one and i'm not really looking forward to it. I hope Soph proves me wrong.
In other news the lactulose is helping, very small progress but things are moving and we haven't had a repeat of last weeks potty screaming. So far so good though...
I have a few things to sort next week, Sophies nursery have annoyed Ian and I immensely but I haven't decided yet whether i'm going to blog about it. I'll see after Monday. I also need to phone Sophies surgeon at the other hospital to ask him to write a letter to the gastro team at her CF cetre. This is to do with her mic-key button changes. If I get the results I want, i'll fill you all in next week.
Sorry the last part of this blog is covered in mystery! Hopefully all will be revealed soon, as that will mean it is all sorted, otherwise my head may just actually explode.