Hannah has been sedated and paralyzed all day, again. Day #2 postop.
Daddy and the kids (and animals) all arrived in Vegas in the early afternoon at our new home. Suddenly, it just all hit me at once that I am homeless right now. I feel like a resident of TCH, wandering the halls at all hours to my room, my meals, and my new daily life. Tomorrow will be the beginning of week #4 here. My “home” is now 1600 or so miles away.
I miss my family. I miss Daddy and the kids horribly. What I would give for a hug and a kiss from them right now.
I miss Hannah, my Hannah. I spent a lot of time in Hannah’s room, many times just sitting in the chair holding her hand, stroking her face, and massaging her legs. She just lies there. I want so much to just scoop her up and cuddle with her. I would give anything right now to be able to just see her look at me and smile. I see this beautiful little girl, lying in the crib in the PICU, completely still, still on a vent through her trach and about a dozen other leads and IVs, nonresponsive…
I miss my Hannah. It has been too many weeks now since I have seen her just “be.” It still will be a few more days until she gets taken off “fresh trach precautions” and may be even able to hold her again.
I worry about Hannah once they wean her off, her addiction to these narcotic sedatives they had to use. I fear that they will change her.
I just want my Hannah back, exactly as she was 3-1/2 weeks ago.
Hannah has been sedated and paralyzed all day, again. Day #2 postop.
Daddy and the kids (and animals) all arrived in Vegas in the early afternoon at our new home. Suddenly, it just all hit me at once that I am homeless right now. I feel like a resident of TCH, wandering the halls at all hours to my room, my meals, and my new daily life. Tomorrow will be the beginning of week #4 here. My “home” is now 1600 or so miles away.
I miss my family. I miss Daddy and the kids horribly. What I would give for a hug and a kiss from them right now.
I miss Hannah, my Hannah. I spent a lot of time in Hannah’s room, many times just sitting in the chair holding her hand, stroking her face, and massaging her legs. She just lies there. I want so much to just scoop her up and cuddle with her. I would give anything right now to be able to just see her look at me and smile. I see this beautiful little girl, lying in the crib in the PICU, completely still, still on a vent through her trach and about a dozen other leads and IVs, nonresponsive…
I miss my Hannah. It has been too many weeks now since I have seen her just “be.” It still will be a few more days until she gets taken off “fresh trach precautions” and may be even able to hold her again.
I worry about Hannah once they wean her off, her addiction to these narcotic sedatives they had to use. I fear that they will change her.
I just want my Hannah back, exactly as she was 3-1/2 weeks ago.