oh, wow, isn't this fantastic? (the problem with blogs is that you can't hear the sarcasm in my voice)
Posted Mar 13 2010 11:37am
so, this should be interesting. they're opening a new $100million research centre in hamilton, ontario. they will be researching heart and stroke prevention, diagnosis and treatment. isn't that fantastic?
except for one minor problem.
they aren't researching congenital heart disease. only acquired heart disease.
you'll understand if i'm not thrilled about this. don't get me wrong, i appreciate the need to research acquired heart disease. it affects millions of people around the world every year. but, um... what about the people who have heart disease who did nothing other than be born? do they not count? or is researching the #1 birth defect not important. in canada, 1 in 70 babies is born with heart disease of one type or another (and there are over 100 kinds, of varying degrees of severity). i guess they don't count.
you can read the article about the reseach centre here . and fyi... i'm planning on writing a few letters about this. to the research centre, the spec and other local news media, the local MPP, the minister of health... because this just isn't right. these kids are overlooked too often. and that's gotta change. grrrr.