There is a little girl I'd like to introduce to you all. She is a precious little girl, who is part of our little "club", which is how I met her & her Momma. Meet Maddi...
Isn't she a cutie pie?!! Maddi has ToFw/PA, MAPCA's, as well as duodenal atresia & reflux. She had her first open heart back in August of '09, as well as a couple of heart caths. In addition to the heart related surgeries, Maddi has had surgery to correct her duodenal atresia, as well as a G-tube placed & the Nissen. From what I've learned about Miss Maddi, she is a very complicated case of tet.
Just recently, Maddi went in for a follow up visit. According to her Momma's posts on her carepage, Miss Maddi has been given a grim prognosis. The docs are telling them that Maddi will most likely not make it past 5 years of age, unless she has a heart-lung transplant. Even with that, she doesn't have very long. :0(
I cannot even imagine what a roller coaster this family is on right now. I know they are looking into their options. More importantly, they are trusting in God. Would you all please join me in lifting this beautiful little girl & her family up in prayer?! I'm sure they'd appreciate it.