Kayla's Debut on National TV for the MDA Jerry Lewis Telethon This Weekend
Posted Sep 02 2009 8:02pm
So much has happened in the last month and I keep thinking about blogging but just haven't been able to find the time. Well, this weekend I have something big to blog about. Our family has been incredibly blessed to be selected as one of four families who will share their story with the country on the National MDA Jerry Lewis telethon in Las Vegas this Labor Day weekend. We feel a great responsibility in sharing Kayla's story as it represents so many brave families across the world living with myotonic dystrophy. I hope that you can all watch and support the MDA who does so much for families living with myotonic dystrophy and the 43+ neuromuscular diseases the MDA supports. Here are some of the highlights from the past month and a schedule of our appearances.