Dear Friends,
So much has happened in the last month and I keep thinking about blogging but just haven't been able to find the time. Well, this weekend I have something big to blog about. Our family has been incredibly blessed to be selected as one of four families who will share their story with the country on the National
MDA Jerry Lewis telethon in
Las Vegas this Labor Day weekend. We feel a great responsibility in sharing Kayla's story as it represents so many brave families across the world living with
myotonic dystrophy. I hope that you can all watch and support the
MDA who does so much for families living with
myotonic dystrophy and the 43+
neuromuscular diseases the
MDA supports. Here are some of the highlights from the past month and a schedule of our appearances.
Kayla in the News: In June, the TV production team from the
MDAdecended upon our family for two fun filled days of filming. Our local TV station came to film the shoot:
http://www.kcra.com/video/19782597/index.html In the July-September issue of Quest Magazine, the four families who will be on the National telethon were featured in a story about the telethon:
http://www.mda.org/publications/Quest/q163telethon.html
Tomorrow morning, Thursday, September 3rd through the 5
th or 6
th, our family will be on the
MDA homepage:
http://www.mda.org/, talking about what the telethon will mean to us.
And then this weekend we will share Kayla's story and be interviewed live on the telethon. The current schedule for our appearances is:
Sunday, September 6 – Hour 2 – 6:55 - 7:45 p.m. Pacific
Monday, September 7 – Hour 19 – 12:30 - 1:20 p.m. Pacific
Find your local TV station that will be airing the telethon in your area.
Please come out and support the MDA and help end these devastating neuromuscular diseases for good.
With Love and Hope,
Lisa
Dear Friends,
So much has happened in the last month and I keep thinking about blogging but just haven't been able to find the time. Well, this weekend I have something big to blog about. Our family has been incredibly blessed to be selected as one of four families who will share their story with the country on the National MDA Jerry Lewis telethon in Las Vegas this Labor Day weekend. We feel a great responsibility in sharing Kayla's story as it represents so many brave families across the world living with myotonic dystrophy. I hope that you can all watch and support the MDA who does so much for families living with myotonic dystrophy and the 43+ neuromuscular diseases the MDA supports. Here are some of the highlights from the past month and a schedule of our appearances.
Kayla in the News:
In June, the TV production team from the MDAdecended upon our family for two fun filled days of filming. Our local TV station came to film the shoot: http://www.kcra.com/video/19782597/index.html
In the July-September issue of Quest Magazine, the four families who will be on the National telethon were featured in a story about the telethon: http://www.mda.org/publications/Quest/q163telethon.html
Tomorrow morning, Thursday, September 3rd through the 5 th or 6 th, our family will be on the MDA homepage: http://www.mda.org/, talking about what the telethon will mean to us.
And then this weekend we will share Kayla's story and be interviewed live on the telethon. The current schedule for our appearances is:
Sunday, September 6 – Hour 2 – 6:55 - 7:45 p.m. Pacific
Monday, September 7 – Hour 19 – 12:30 - 1:20 p.m. Pacific
Find your local TV station that will be airing the telethon in your area.
Please come out and support the MDA and help end these devastating neuromuscular diseases for good.
With Love and Hope,
Lisa