Well we have finally got a fully working computer so now need to update you all of whats been going on in our lives.
We have had a few hospital visits in last couple months, the first one at Manchester to see Dr Rocoski. He always brings up the issue of Imogens eating, and he cannot understand why she still needs all her nutrition via her gastrostomy. He is thinking it must be medical, but as most of you who know us will know that it is just lack of understanding of how to eat and also sometimes too much of a chore for her to eat. It isn't through want of not trying on our behalf. Its a frustrating daily battle to get her to eat just small amounts. Anyway he has now referred us to see a gastrologist doctor who will do some PH monitoring overnight tests. Think he thinks there is some miracle medical cure!!
Couple of weeks ago went to see our local consultant Dr Peckham. She also thinks along of our lines about Imogens eating, and is referring us to a phycologist to hopefully talk to Imogen about the reasons she doesn't eat. She has also referred us again to the feeding clinic at Alder Hey to see if they have any ideas. She is really pleased with Imogens progress overall and we see her again in about 5 months.
Imogen is doing really well at school, her reading and writing have come on in leaps and bounds and she has some lovely friends and even swallows her lunch!! Cant believe she is nearly in year 1, time goes so fast.