I have been thinking a lot the ...

I have been thinking a lot the past few days about the tragedy that occurred in AZ last week. For those of you who are unaware the "Rett Community" was devastated by the news of a five year old little girl with Rett Syndrome that was withheld her medicine and starved to death by her Uncle who was her "guardian" at the time. Guardian.....that term sure does not fit that horrible man. I have thought of many names for this gentleman over the past few days and guardian and care provider were not on my list. I only have peace with this incident knowing that this precious angel is now in heaven with her true care provider. I pray she is dancing and playing with all the Rett Angels that have gone before her.
You know.....over the past few months I have had my share of pitty parties for myself.....I often ask why do my kids have to struggle? Brooklyn with Rett Syndrome and now Boston with Down Syndrome (heck - Charlie struggles at ton with his Behcet Syndrome and Anklosing Spondalitis) I ask "why" a lot and then something like this happens and a sweet innocent little girl suffers and dies and then I "get it".....God gave me these AMAZING kiddos so that I could love them. So that Charlie and I could be their care providers. Brooklyn and Boston will never miss their meds or starve. Don't get me wrong I am sure (like any kid) at some point in their lives they will not like us - all kids go through that in their teenage years, right?!! But I hope that one thing will always be for sure.....our kids are loved. I want my kids to know that they can always count on me to care for them.
Thank you God for giving me this opportunity to love......give me the strength to do job right.