So we made it home fine from St. Louis. We had a super time with my sisters. Ava had a follow-up surgical appointment today. All is going well. I asked to keep the central line for a few extra months just for precautionary measures. I’m praying this is the end of all surgeries or for a while but we still have to be safe.
She is finally on the growth chart. She is now 28 pounds. That means she is 25% for weight and 75% for length…go figure! We are going to wean her off tpn this week. I will just have to flush her line once a day and keep her dressings changed just as always. Josh was happy with how she looked. Were not able to see doctor Shilyanski…he was just too busy and I didn’t want to wait any longer. We had already waited a whole hour….if anything God is teaching me patience! Here are the girls at the doctors today.
Monday we went to the St. Louis Zoo with my sister Amanda and her kids. Ava was simply in Heaven. She enjoyed it so much. I am so glad we took a chance and went away.
Blain, Abby, Lexis, Ava, Emeline and Jaz
AND who knew Ava was a musician. She had a blast this night!
Perhaps she will be a singer. She has never thrived attention but Sunday night she DID. It was so great to see this side of her. We all had so much fun. Here is me and two of my sisters.
Again thanks for your continued prayers for Ava. We are loving how well she is doing.