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Hannah surgery update

Posted Mar 30 2012 12:00am
I am going to combine a few  days into one post.  It's hard to get on here at the hospital.
Hannah is doing better, they might move us to the floor (2A) if there is a bed there today...still in some pain and guarding her belly...they are waiting for bowel sounds to feed her.
It's cool, we have 1 nurse shadowing the other today annd she goes to church with my in laws...chuck's dad told her she might see Hannah today!

Hannah is doing good, now waiting for more bowel sounds so they can start feeding her so far just a few gurgles...she was sleeping so sound when I came in they weren't sure why her monitors were going off...

Hannah is now sound asleep on a regular floor, finally on 2A...feels like home. :)

still waiting for Hannah to have a bm...a few more bowel sounds today but nothing signific ant...they said it's according to Hannah's plan but I told them I don't always like her plans LOL she can't get out of bed yet, too many tubes...foley catheter, mitrofanoff catheter (both draining in bags) and a drain bag for her gtube! she is just chillen though and doesn't appear to be in a lot of pain...

Hannah update...she started 5cc/hour of pedialite last night and increased it to 25cc this morning (one dr wanted to increase it to her rate of 160 from 5...I told him no way..the NP did the 25...now they are going to add some formula to it 1/2 strength to see how she tolerates that. so far so good, some gas but no bm yet. Since she has been here they do a lot of blood pressures, maybe every 1/2 hour..she gets agitated everytime so the #s looked high...then last night we realized she is not agitated and her blood pressure is really high, 146/113 is the last one. The medically complex dr thinks there is a connection between high blood pressure and a rash/hives thing she gets a lot...don't remember what he said, will ask when I see them again...I thought the rash thing was some type of stress..nephrology is consulting with the medically complex..whatever that connection is they are doing urine and blood cultures for it

Hannah update...the thinking now is Hannah has had high blood pressure for a while, they are going to do an echocardiogram to see if it shows that..so now we are going to have to go home with blood pressure meds...so thankful that we had this surgery to find this out. I just told her she can't be inpatient here anymore, we always leave with a new diagnosis or new dr (although we already see nephrology) They have to watch her for 48 hours since the new med can cause high creatinine levels. So we should be going home on Sunday...and they are increasing her feedings some more today and started her miralax...
Today: After a little help she finally had a blowout but in her wheelchair :(  She is still having blood pressures issues. She is now up to her normal feedings and we got to walk around the unit for a while.  Sodium levels are low so they are working on getting them up, so hopefully that won't delay us going home. 
  It's really nice having the medically complex team following her now.  Dr M handles everything and this hospitalization has helped him get to know her better.  Hopefully we are still on track for Sunday.
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