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From Sweet Princess to Princess of Evil

Posted Oct 13 2009 10:05pm
Taylor sleeping with the aid of Dilaudid after surgery

It has been a crazy week. Taylor seemed to come through her revision of the revision of the revision of the VNS surgery. Are you confused yet? In other words, in 18 months, this is the 3 rd VNS surgery she has had. I'm thinking this will be the last one…at least for 5 years. I won't even speculate if she will make it to the 5 years because I'm in denial of what the doctors are saying.


Anyway, after coming home, the pain medicine seemed to do a number on my normally very sweet child. She's had this medicine before since she's had a dozen surgeries so I'm not sure why the issues this time. I mean seriously…my affectionate, loving, sweetie threw lego bricks at me! She then layed on her bed crying and promptly fell asleep for several hours. After calls to the doctor and changes to her pain meds, she seemed a little better…until Friday.


She started coughing and running a temperature. We ended up going into Urgent Care this morning because her coughing made the incisions in her chest hurt worse. Now she has bronchitis. They also did a chest x-ray to make sure the surgery didn't cause a pneumothorax. Fortunately, while her lung is a little "under-inflated" (doctor's words), she didn't need to be admitted for a chest tube.


Why is nothing ever easy with Taylor? Why is a "simple" surgery never a simple surgery? Okay, sorry for being whiney. Taylor is just Taylor and after 20 years, you would think I would just accept the fact that Taylor does her own thing in her own time regardless how stressed it makes her mother.

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