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F.R.I.E.N.D.S.H.I.P. S.U.P.P.O.R.T. E.D.U.C.A.T.I.O.N. H.U.M.O.R.

Posted Mar 02 2010 4:47pm
Another wonderful post I stumbled upon...hope you all enjoy as much as I. This could not be more true!! It answers the question we often can't answer when a parent to an extra special little one, that is. Most important to me today, is understand what Brayden needs when he can't speak a word. Hydranencephaly is such a mystery, and never knowing for sure is definitely my biggest struggle and it overtakes me at times.

Anyways, enjoy...

F.R.I.E.N.D.S.H.I.P. S.U.P.P.O.R.T. E.D.U.C.A.T.I.O.N. H.U.M.O.R.
by Andee Dunn (Jan.1996)

How do you do it? Well, in no particular order...this is what it takes:

FAITH...that God will never give me more than I can handle find what my children need comprehend all the medical & technical knowledge I'll be given
ENERGY...for all the many trips to doctors, clinics, hospitals, schools, etc.
NEIGHBORS...and friends that lend a hand now and then
DETERMINATION...that my children will each reach his or her maximum potential continue in the face of depressing odds teach my children there's joy in life with special needs be able to know the right thing at the right time I can fight for the rights of my children

  • SUPPORT...from others that have 'been there' before meUNDERSTANDING...for those times when they do what only multiples can do knowing that I am doing my absolute best for my children the dishes get done and the laundry too
    OPEN-MINDEDNESS...when looking for the best therapies for each child no one or nothing is forgotten
    TENDERNESS...that I may not be too harsh when responding to ignorance

  • get me thru the times when no one knows why it didn't repeat thousands of necessary therapies upon my children I can make use of something not usually used that way my abilities to know what my children need I can thank God everyday for giving me such special children myself and those I'm close to sense what's needed by a child that can't tell me their needs there is at least a basic plan each day it and getting it

  • I don't forget to laugh when they do something funnyUNRELENTING I can feel it, teach it, and give it
    MILDNESS...for those times when the kids are rivaling siblings I can see things from a brighter point of view
    READINESS...for the unexpected

  • Yes, it's a lot! It's what I do, every single day, no weekends off. Our children are always going to need that special care. We provide it directly, or indirectly thru respite providers day in and day out, 365 days a year for the rest of their lives. We also have to help their co-multiple siblings to deal with these things.
    And I wouldn't trade anyone, anything, for what I've got! Six wonderful kids: a surviving twin who will someday be on her own (as her days with intervention & therapies seem to be over); an undiagnosed special daughter who will always live with her weaknesses (but she has many strengths); a totally average daughter (that requires special care due to having five special siblings); a gifted son who will always have trouble seeing (and will miss his brother now & then); his co-quad sister who may never speak as we know it and will always be challenged by her lack of muscle tone; her identical sister who will not only battle with what she shares with her co-quad twin but will also need to cope with her potential loss of sight.
    Andee Dunn (MOM to Bryana (7/82), CJ (11/85), Allyssa (7/88) and
    Mack (12/91), Rebecca (12/91) & Jessica (12/91) and
    married since 9/79 to SHAWN, the computer genius!)
    E-Mail You can reach all of us there!
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