Today was jam packed full of appointments, but amazingly not that hectic. I'll try to give you a rundown of the day and the updates at the same time.
We started at the opthamologist's office at 7:45 a.m. God's answering our prayers. Gavin's eyes are improving. She said that she now doesn't feel that he was farsighted before the tumor. He has sixth nerve palsy, but it now only appears to be affecting his left eye (and only when he looks to the left, at a distance). She even said that she didn't think he'd be in glasses permanently!!! I so wasn't expecting that bit of news. It made my day! (Not that glasses are a big deal -- especially in our world these days. It's just nice to think that this is one issue that could very well resolve.) She said that she doesn't really think that the palsy is from the hydrocephalus (increased pressure in the brain from the tumor before surgery), but instead that this could be from one of the chemo drugs Gavin's on. (Vincristine, for those who care --- which is one of the few chemo drugs that he still received while on radiation.) The doctor also gave me a few suggestions that might help with his sun sensitivity.
From that appointment, we raced over to the proton center (different hospital system -- a ways down the road from each other!). We were late, but they were nice about it. Radiation, as always, is our least stressful appointment. They're such a nice bunch over there and they simply LOVE the kids they treat!
We hurried home for lunch and some TPN maintenance before physical therapy at 1:00. Gavin actually ate some lunch. Most moms would hardly consider his intake "lunch", but for Gavin these days -- it was WONDERFUL. He even said, "I'm hungry!" before sitting down to eat. I really can't remember the last time he uttered those words. Funny thing is I quit giving him the appetite stimulant medicine a couple of days ago because he seems to eat less when he's on it. (Gavin SOOOOO beats to his own drum with this disease!)
Physical therapy was next and went very well once we got there. It took 30 minutes to get a parking spot because 3 parking garages said they were full, only they weren't. Eventually, I drove into one of them and it was the most empty I've ever seen it. Apparently, the signs do that sometimes. Things like that drive me crazy!!! We were 20 minutes late to therapy, which drove me crazy because I've been the therapist on the other end waiting on someone to show up. But, it worked out okay. I've loved the physical therapists Gavin has had at Texas Children's. He has made SO much progress because of them.
And last, but not least, (drum roll, please!)............ we made it in and out of the cancer clinic in an even THREE hours. It's a new record! I was so happy as I left that place. (If you have low expectations on when you'll get to head home, you're so very happy when you leave a bit earlier. It literally makes your day!) No big news received with that appointment, which I'll take any day of the week over bad news.
So, for a Thursday, this one was a breeze! Thanks to those of you that prayed for the day.
John 14:13-14 Jesus said, "I will do whatever you ask in my name, so that the Son may bring glory to the Father. You may ask me for anything in my name, and I will do it."
Specific Prayer Requests: - Finish radiation without delays and/or complications - Improved hearing (he should have the ABR test done on his hearing in a week or so) - Increased appetite and weight gain - Continued improvement on his vision and walking - Minimal long-term and short-term side effects from cancer treatments - As always -- a complete cure from his cancer.